Psychologist Sylvia von Mackensen shares how her leap from sick buildings led her to become the guru of quality of life in haemophilia
From the development of standardised tools, their benefits and limitations, through to the challenges and changes we face in assessing quality of life for people with haemophilia and bleeding disorder...
6 Heinä 202331min
The Qualitative Revolution has Begun | Creative Qualitative Research feat. Dr Rich Gorman, Social Scientist at at Brighton and Sussex Medical School
Qualitative research is increasingly challenged to think creatively and critically about how accounts of lived experience might be collected, curated, and shared. Historically it could be said that qu...
13 Huhti 202344min
What does ageing well with haemophilia look like? | featuring Dr William McKeown and Randall Curtis
They say old age isn't so bad when you consider the alternative... In this episode, host Luke Pembroke (Haemnet's Director of Community Engagement) is joined by community members Dr William McKeown (...
21 Maalis 202338min
International Womens Day 2023 - The challenges faced by women in the bleeding disorders community ft. Dawn Rotellini, NHF
In this International Women's Day episode of Haemcast, two influential women leaders in the community, host Dr Kate Khair and Dawn Rotellini of the National Hemophilia Foundation (USA) discuss the cha...
8 Maalis 202335min
Shared decision making in an evolving treatment landscape for haemophilia and bleeding disorders ft. Dr Len Valentino, CEO National Hemophilia Foundation
"Shared decision making" has quickly become the new phrase bandied about at event and conferences within the haemophilia community. But what does shared decision making in haemophilia and bleeding dis...
20 Helmi 202329min
Beyond approval | Considerations and Challenges in Access to Gene Therapy featuring Nicola Redfern
In this episode of Haemcast, host Dr Kate Khair speaks with Nicola Redfern, former UK General Manager and Northern European cluster lead at bluebird bio and experienced leader in the biopharmaceutical...
28 Marras 202236min
Gene Therapy, Liver Health and... cheese featuring Professor Graham Foster Professor of Hepatology at Queen Mary University of London and clinical lead for Hepatology at Barts Health
Professor Graham Foster (Professor of Hepatology at Queen Mary University of London and clinical lead for Hepatology at Barts Health) joins us in this episode of Haemcast to discuss considerations aro...
14 Loka 202227min
Tinkling the Ivories | Oral health in haemophilia and bleeding disorders ft. Alison Dougall, Professor/Consultant Dublin Dental University Hospital, Director of SCD doctorate programme Trinity College
In this episode of Haemcast, our host Dr Kate Khair speaks with Alison Dougall, President of the International Association for Disability and Oral Health (iADH) and Consultant/Professor in Special Car...
22 Elo 202232min
