Same but different; the challenges faced by the Glanzmann's Thrombasthenia community feat. The Glanzmann's Research Foundation
Glanzmann's Thrombasthenia (GT) is a rare bleeding disorder, estimated to affect 1 in a million people. Compared to more "common" bleeding disorders such as hemophilia, GT receives a lot less attentio...
21 Heinä 202234min
WHD African Update: Dr Kate Khair speaks to Agnes Kisakye of the Haemophilia Foundation of Uganda
As we celebrate World Hemophilia Day, Dr Kate Khair and guest Agnes Kisakye talk about the Haemophilia Foundation of Uganda and its mission of ensuring access to all
17 Huhti 202224min
Using Storytelling to Educate and Empower the Hemophilia & Bleeding Disorders Community ft. Patrick James Lynch, Founder & CEO, Believe Ltd
In this episode, Luke Pembroke, Creative Director, Haemnet, speaks with Patrick James Lynch, haemophilia community advocate and Founder of Believe Ltd; a production company based in LA creating enter...
21 Maalis 202232min
The 1 in a Million Bleeding Disorder: Glanzmann's Thrombasthenia w/ Dr Catherine Rea
We hear a lot about hemophilia within the bleeding disorders community but of course it isn't the only bleeding disorder. In this special Rare Disease Day 2022 episode of Haemcast, Kate Khair speaks w...
28 Helmi 202229min
What is the Exigency Study? feat. Lead Investigator & Research Nurse Simon Fletcher, Oxford University Hospitals NHS Trust
You might have seen Haemnet posting about and recruiting for the Exigency Study last year. We found ourselves getting a lot of questions and comments about the study from "what does exigency mean?" to...
28 Tammi 202227min
Risk-benefit assessment for Gene Therapy in Haemophilia ft. Declan Noone, EHC President
Declan Noone, President of the European Haemophilia Consortium (EHC) joins Haemcast hosts, Dr Kate Khair and Luke Pembroke to discuss the complexities surrounding risk-benefit assessment when making a...
20 Joulu 202143min
Universal precautions; not gloves and aprons but health literacy and shared decision making ft. Jonathan Berry. NHS Improvement, Personalised Care Group
In this episode of Haemcast, hosts Dr Kate Khair and Luke Pembroke discuss the topic of health literacy with Jonathan Berry from NHS England and NHS Improvement. The challenge of educating and engagin...
7 Loka 202132min
Some is good, more is better | physical activity in haemophilia feat. Melanie Bladen & Ruth Elise Matlary
In this episode our host Paul McLaughlin, physiotherapist at The Royal Free Hospital London, speaks with fellow expert physios, Melanie Bladen (Great Ormond Street Hospital, London) and Ruth Elise Mat...
6 Syys 202140min
