Living with Long covid

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together.

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Jaksot(107)

As requested....My experience on using a fitted Vagus nerve stimulator!

As requested....My experience on using a fitted Vagus nerve stimulator!

Send a text As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed t...

14 Huhti 202427min

NHS court hearing update with Kevin Digby and Rachel Hext

NHS court hearing update with Kevin Digby and Rachel Hext

Send a text In this episode of the podcast I talk with Kevin Digby and Rachel Hext following the High court hearing on the 6th March 2024. Kevin is a partner at GA Solicitors and is representing nearl...

17 Maalis 202440min

Professor Louise Cummings and Kerry Davies; research, speech,  language and cognitive communication disorders in Long Covid

Professor Louise Cummings and Kerry Davies; research, speech, language and cognitive communication disorders in Long Covid

Send a text In this episode of the podcast, I am grateful to have two fantastic guests join me, Professor Louise Cummings is a professor at the Hong Kong polytechnic university, she conducts research ...

25 Helmi 202438min

Q&A with Kevin Digby GA Solicitors

Q&A with Kevin Digby GA Solicitors

Send a text Over the last couple of weeks you may have seen in the news, Dr Fearnley and the group she co-founded Long Covid Doctors for action; If not, these are a group of doctors who have come tog...

11 Helmi 202435min

Invisible? but you can see and hear me!

Invisible? but you can see and hear me!

Send a text On this episode of the podcast I discuss invisible disability, and how a Ted talk I recently had sent to my inbox, had such an impact on me. I watched the Ted talk and could relate to Dr ...

28 Tammi 202421min

Starting a new year 2024; not everything is perfect or planned

Starting a new year 2024; not everything is perfect or planned

Send a text Happy new year to everyone, this is the first podcast of 2024 and I will be honest it has no structure at all, but then that was the point! I wanted to talk today about how not everything ...

14 Tammi 202429min

Keeping healthy boundaries

Keeping healthy boundaries

Send a text It is Christmas Eve 2023 and on this episode of the podcast I talk about creating healthy boundaries. What are healthy boundaries? how can we set and manage healthy boundaries in our live...

24 Joulu 202328min

Jo Bullingham joins me from POTS UK

Jo Bullingham joins me from POTS UK

Send a text On this episode of the podcast I chat with Jo Bellingham, charity manager for POTS UK. Jo and I discuss the POTS UK charity and Jo explains what the charity does and how it supports peopl...

10 Joulu 202338min

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