#44 How to talk so your doctor will listen: patient advocacy for POTS, EDS, MCAS, ME/CFS and Long COVID, with Penny Parkes
Do your medical appointments leave you disappointed, frustrated, angry or traumatised? Do you come away without the diagnosis, referral or treatment you were hoping for? Here is the advice that could...
6 Marras 1h 9min
#43 Patient-focused care and practitioner education with Bateman Horne Center’s, Tahlia Ruschioni
Putting patients at the heart of chronic illness care and research whilst supporting and educating practitioners, to develop robust, proven pathways and positive outcomes for those with ME/CFS, Long C...
16 Loka 1h 2min
#42 Uniting the field to move faster together with Complex Disorders Alliance's Amy Rochlin
Bringing together research across Long Covid, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS) and other co-m...
1 Loka 1h 4min
#41 Cracking the genetic code of complex chronic illness with Steve Gardner, PrecisionLife
PrecisionLife are cracking the genetic code in complex chronic illness with their latest research in ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome) and Long Covid. Through large-scale s...
7 Syys 52min
#40 Symptom connections in ME/CFS, Long Covid, EDS & Fibromyalgia - Orthostatic Intolerance, pain, PEM & MCAS
REVIEW: with Nancy Klimas, Peter Rowe, Lucinda Bateman, Todd Davenport & Theoharis Theoharides For decades, people living with ME/CFS, Long Covid, fibromyalgia, EDS and other complex chronic illnesses...
7 Elo 1h 4min
#39 ME/CFS & EDS bedbound for 8 years - Learning to Live Again with Lizzie and Amy Mooney
STORIES: ME/CFS and EDS left Lizzie bedbound for eight years - a mother's fight for answers and a daughter's fight to reclaim independence. Lizzie Mooney became chronically sick with ME/CFS and Ehlers...
24 Heinä 52min
#38 Pacing is Power - POTS, PEM, EDS & MCAS strategies with Dr Clayton Powers
STRATEGIES: Physical therapy tools to reduce crashes and improve quality of life for POTS, Post-Exertional Malaise (PEM), EDS, MCAS, and infection-associated chronic conditions such as ME/CFS and Long...
10 Heinä 59min
#37 ME/CFS breakthroughs: are treatments getting closer? With ActionForME, NIH, CODA, Bateman Horne Center & PrecisionLife
SCIENCE: Are ME/CFS research breakthroughs finally helping us understand the disease and move closer to treatments? ME/CFS has been underfunded and under-researched for decades. Despite the scale and...
26 Kesä 59min
