SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(446)

Pre-symptomatic Infants Retain Swallowing Ability in Evrysdi Trial

Pre-symptomatic Infants Retain Swallowing Ability in Evrysdi Trial

SMA News Today’s multimedia associate, Price Wooldridge, reads an article on how pre-symptomatic infants with SMA have retained the ability to swallow after being treated with Evrysdi for at least one...

18 Loka 20216min

Spinraza RESPOND Trial Enrolling Children Not Helped by Zolgensma

Spinraza RESPOND Trial Enrolling Children Not Helped by Zolgensma

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) children not helped by Zolgensma, are being enrolled in the Spinraza RESPOND trial. Plus, usually ...

14 Loka 202110min

Low Bone Density Puts SMA Children in China at Risk for Fractures & DeAnn Runge's Favorite Hobbies

Low Bone Density Puts SMA Children in China at Risk for Fractures & DeAnn Runge's Favorite Hobbies

SMA News Today’s multimedia associate, Price Wooldridge, discusses how low bone density puts Spinal Muscular Atrophy (SMA) children in China at risk for fractures. Plus, DeAnn Runge talks about one o...

11 Loka 202110min

Certain Abilities Decline in SMA Children Unable to Walk & Gaming to Find Accessibility

Certain Abilities Decline in SMA Children Unable to Walk & Gaming to Find Accessibility

SMA News Today’s multimedia associate, Price Wooldridge, discusses how certain abilities decline in Spinal Muscular Atrophy (SMA) children who are unable to walk. In a world that can be less than acce...

7 Loka 202114min

#91: Interview with Blake Watson, Web Designer and Developer

#91: Interview with Blake Watson, Web Designer and Developer

In episode 91, host Kevin Schaefer talks with Blake Watson from Byram, Mississippi. Blake is a web designer and developer. He is currently a member of the frontend dev team at MRI Technologies, workin...

5 Loka 202141min

Trial of Spinraza at High Dose for Patients Who Have Used Evrysdi & Dealing With Your Period

Trial of Spinraza at High Dose for Patients Who Have Used Evrysdi & Dealing With Your Period

SMA News Today’s multimedia associate, Price Wooldridge, discusses a trial planned of Spinraza at high dose in Spinal Muscular Atrophy (SMA) patients who have used Evrysdi. Read the news article: http...

4 Loka 20218min

Blood NfL Levels May Mark SMA Severity, Therapy Efficacy in Very Young

Blood NfL Levels May Mark SMA Severity, Therapy Efficacy in Very Young

SMA News Today’s multimedia associate, Price Wooldridge, discusses how blood neurofilament light chain (NfL) levels may mark Spinal Muscular Atrophy (SMA) severity and therapy efficacy. Although she ...

30 Syys 202114min

Variant in Androgen Receptor Might Be Useful in Treating SBMA

Variant in Androgen Receptor Might Be Useful in Treating SBMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses a variant of an androgen receptor protein which may be useful in treating Spinal and Bulbar Muscular Atrophy (SBMA). Also, on what c...

27 Syys 20219min

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