SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(445)

Being An Uncle With SMA and How This Role Can Change One's Life

Being An Uncle With SMA and How This Role Can Change One's Life

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Michael Casten, “Five Servings of Strength”, Ella Has Made Big Gains Since Diagnosis Day. SMA News Today’s Columnist and ...

30 Joulu 20208min

Smart Tech Is Integral to My Quality of Life & 2020 Highlights

Smart Tech Is Integral to My Quality of Life & 2020 Highlights

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, “The Wolf Finally Frees Itself”, Yes, Actually, Smart Tech Is Integral to My Quality of Life. SMA News Tod...

28 Joulu 20208min

Rising From the Ashes and Flying With Broken Wings & Finding My Voice In the Disability Community

Rising From the Ashes and Flying With Broken Wings & Finding My Voice In the Disability Community

SMA News Today’s multimedia associate, Price Wooldridge, reads a column by Hasley Blocher, “From Where I Sit”, Rising From the Ashes an Flying With Broken Wings. SMA News Today’s forums moderator, De...

25 Joulu 20207min

Financial Burden of SMA Much Higher Than Other Conditions & The Mental Benefits of Physical Therapy

Financial Burden of SMA Much Higher Than Other Conditions & The Mental Benefits of Physical Therapy

SMA News Today’s multimedia associate, Price Wooldridge, discusses the higher financial burden on Spinal Muscular Atrophy (SMA) patients, compared to other conditions. SMA News Today’s Columnist and...

23 Joulu 202012min

Measuring Neurological Impact of Polio Proves Useful in SMA, Study Reports

Measuring Neurological Impact of Polio Proves Useful in SMA, Study Reports

SMA News Today’s multimedia associate, Price Wooldridge, discusses how measuring the neurological impact of Polio proves useful in studying patients with Spinal Muscular Atrophy (SMA). SMA News Today...

21 Joulu 202010min

Genetic Analysis of Families Finds Novel Mutations in SMA & The Lack Of Privacy When Living With SMA

Genetic Analysis of Families Finds Novel Mutations in SMA & The Lack Of Privacy When Living With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses a genetic analysis of families with a member affected by Spinal Muscular Atrophy (SMA) which finds novel mutations in SMA patients. ...

18 Joulu 202010min

Zolgensma-associated Liver Abnormalities Common but Manageable & I’m Disappointed, and That’s OK

Zolgensma-associated Liver Abnormalities Common but Manageable & I’m Disappointed, and That’s OK

SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which finds Zolgensma-associated liver abnormalities are common but manageable in children with Spinal Muscular Atrophy (SMA)...

16 Joulu 202011min

#72: Evrysdi, Physical and Mental Health, and Highlights of 2020

#72: Evrysdi, Physical and Mental Health, and Highlights of 2020

In episode 72, Kevin Schaefer and Michael Morale reflect on the craziness of 2020, and they highlight some of the key pieces of content SMA News Today created this year. They also discuss Michael’s on...

15 Joulu 202047min

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