SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(445)

Neurological Alliance Report Calls for Better Treatment, Care for UK Patients

Neurological Alliance Report Calls for Better Treatment, Care for UK Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses a Neurological Alliance report calling for better treatment and care of U.K. patients living with rare neurological conditions such a...

14 Joulu 20207min

Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants

Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza is linked to temporary abornalities in immune cells in two Spinal Muscular Atrophy (SMA) infants. SMA News Today’s foru...

11 Joulu 20209min

Extensive Trial Monitoring Confirms Evrysdi Does Not Damage Vision & The Series "Boy Meets World"

Extensive Trial Monitoring Confirms Evrysdi Does Not Damage Vision & The Series "Boy Meets World"

SMA News Today’s multimedia associate, Price Wooldridge, discusses how extensive trial monitoring confirms Evrysdi does not damage vision in children or adults with Spinal Muscular Atrophy (SMA). SMA...

9 Joulu 202011min

Olesoxime Failed to Benefit SMA Type 2 and 3 Patients, Final Trial Data Show

Olesoxime Failed to Benefit SMA Type 2 and 3 Patients, Final Trial Data Show

SMA News Today’s multimedia associate, Price Wooldridge, discusses how olesoxime failed to benefit Spinal Muscular Atrophy (SMA) Type 2 and 3 patients in a final trial. SMA News Today’s forums moder...

7 Joulu 20209min

Gene Therapy Given Directly to Spinal Canal Might Be Safer With ‘Silencing’ Step

Gene Therapy Given Directly to Spinal Canal Might Be Safer With ‘Silencing’ Step

SMA News Today’s multimedia associate, Price Wooldridge, discusses how gene therapy, given directly to the spinal canal, might be safer with a “silencing” step. SMA News Today’s forums moderator, DeA...

4 Joulu 202010min

Exploring The Intersection of Identity and SMA

Exploring The Intersection of Identity and SMA

Forums Director Kevin Schaefer explores the intersection of identity and SMA in his latest column. To learn more about spinal muscular atrophy, visit our website at www.smanewstoday.com.

2 Joulu 20204min

#71: Interview with Kristen Resendez, SMA Parent and Advocate

#71: Interview with Kristen Resendez, SMA Parent and Advocate

In episode 71, host Kevin Schaefer talks with Kristen Resendez from Harlingen, Texas. Kristen’s son, Jack, has SMA, and she is an active member of the SMA community. During this conversation, she talk...

1 Joulu 202040min

Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients

Spinraza Shown to Preserve Respiratory Muscle Strength in SMA Type 2 Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study has shown Spinraza preserves respiratory muscle strength in Spinal Muscular Atrophy (SMA) Type 2 patients. Are you inter...

30 Marras 20205min

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