Eurordis' Integrated Care Initiative For Rare Disease Patients & Cooperate With Physical Therapists
We discuss how Eurordis unveils an integrated care initiative for rare disease patients. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses working with physical therap...
26 Elo 20199min
RNA Molecule miR-23a May Have Therapeutic Role in SMA & From College Writing Course To A Career
We discuss a study that suggests that the small RNA molecule miR-23a, may have a therapeutic role in SMA. Also, Community Development Manager Kevin Schaefer reads from his latest column. In this post,...
23 Elo 20198min
Zolgensma’s Price And Its 'Cure One, Cure Many' Potential & Concerts Accessibility
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses an interview where researchers talk about Zolgensma’s price, and its cure one, cure many potential. Also, Community Develo...
21 Elo 20199min
#40 - Interview With Kellie Cusack
In episode 40 of the SMA News Today Podcast, host Kevin Schaefer interviews Kellie Cusack. Kellie lives in New Jersey with her family, and is currently studying journalism at a community college. She ...
20 Elo 201928min
High Levels of Alpha-COP Proteins Seems To Ease SMA Severity in Mouse Models & Spinraza For 2 Years
We discuss how raising levels of Alpha-COP proteins, seems to ease SMA disease severity in mouse models. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about being on Spinraz...
19 Elo 20197min
The "Rare Barometer” Is Helping Eurordis Shape EU Rare Disease Policies & SMA Community Diversity
We discuss “Rare Barometer”, which is a program that is helping Eurordis shape EU rare disease policies. Also, Community Development Manager Kevin Schaefer reads from his latest column about diversity...
16 Elo 20199min
Zolgensma For SMA Types 1, 2 And 3, More Options On The Way & Angela Titcombe
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how patients with SMA Types 1, 2, & 3, options for Zolgensma exist, and more may be on the way. Also, Community Developmen...
14 Elo 201911min
Ontario Patients Are Granted With Wider Access To Spinraza & Current Treatments, Brighter Futures
We discuss how SMA patients in Ontario are granted wider access to Spinraza. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how current treatments for SMA are givin...
12 Elo 20198min
