Talking to Friends & Family about PV

Talking to Friends & Family about PV

On this episode of the PV Pod, we dive into the experiences of Steven Ames, who shares his journey with polycythemia vera (PV). Diagnosed during the height of COVID-19, Steven discusses the challenges he faced, including difficult interactions with healthcare providers, the importance of seeking second opinions, and the critical role of having a knowledgeable healthcare team. The conversation also highlights the significance of utilizing a broad support network, which includes family, friends, colleagues, and online communities, to manage the emotional and practical aspects of living with PV.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

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Episoder(27)

Finding Support While Living With PV or ET: An Oncology Social Worker's Perspective

Finding Support While Living With PV or ET: An Oncology Social Worker's Perspective

In this episode of MPN Pod, Kay and Josh sit down with Rachel Suarez, a licensed clinical social worker who specializes in oncology, to discuss the often overlooked emotional and psychological challen...

30 Sep 29min

Everyday Life: Troy's Story of Fatigue, Music, & Resilience

Everyday Life: Troy's Story of Fatigue, Music, & Resilience

In this episode of MPN Pod: Stories from the Marrow, hosts Josh and Kay speak with entrepreneur and musician Troy Putman about living with essential thrombocythemia, or ET. Troy shares how ET-related...

18 Aug 24min

A Young Mom's Journey with Essential Thrombocythemia (ET)

A Young Mom's Journey with Essential Thrombocythemia (ET)

On this episode of the MPN Pod, hosts Kay and Josh sit down with Raqueal, a 33-year-old mother of two from Arizona, to hear her journey with essential thrombocythemia (ET), from an unexpected discover...

8 Jul 27min

Essential Thrombocythemia 101

Essential Thrombocythemia 101

In this episode of The MPN Pod, hosts Kay and Josh sit down with Dr. Tony Hunter, an MPN specialist and associate professor at Emory University, for a comprehensive ET 101. Dr. Hunter breaks down what...

3 Jun 33min

Catching up with Gary Linehan: Living with PV and his Next Big Adventure

Catching up with Gary Linehan: Living with PV and his Next Big Adventure

On this episode of the MPN Pod, hosts Kay and Josh welcome back fan-favorite guest Gary Linehan, a 56-year-old educator and avid hiker living with polycythemia vera, for an update on his journey since...

8 Apr 21min

A Young Patient's Journey: Balancing Career and Polycythemia Vera

A Young Patient's Journey: Balancing Career and Polycythemia Vera

In this season three premiere of the MPN Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg interview Dr. Tyler Parsons, a postdoctoral researcher at Washington University who studies myel...

4 Mar 25min

A 2025 Year in Review for Polycythemia Vera

A 2025 Year in Review for Polycythemia Vera

The Season 2 finale of The PV Pod: Stories from the Marrow takes listeners through a thoughtful year-end review, highlighting the most impactful insights shared by patients, caregivers, clinicians, an...

21 Jan 25min

Self-Empowerment & Polycythemia Vera

Self-Empowerment & Polycythemia Vera

On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her insights on self-advocac...

10 Des 202528min

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