Ep. 5 - Lexi
Patient POV22 Okt 2023

Ep. 5 - Lexi

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!

Today we chatted with Lexi, a fellow spoonie and disability advocate, who shares her journey with Neuromyelitis Optica (NMO), long covid, dysautonomia, and anxiety.

Things that have helped her:

  • Support system - in person (Mom and fiancée), social media (connecting with people who can relate) ​​

  • You need to advocate for yourself or have people around you who can advocate for you (even if you are experiencing medical gaslighting)

  • Find hobbies that you enjoy, explore your creativity, find something that feeds your mind and soul that interests you

  • Leaning on the online community has helped her feel less alone on her health journey

  • Look at everything for the beautiful thing that it is, let's focus on the good and keep moving forward

  • Productivity is not measured to your worth

Resource links:
Pedialyte: https://amzn.to/46UJ1F2

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