Ep. 27 - Stephanie (chronically_stephanie_)
Patient POV21 Apr 2024

Ep. 27 - Stephanie (chronically_stephanie_)

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!

Today we chatted with Stephanie (insta: Chronically_stephanie_) who is a mom and chronic illness warrior. She shares her journey with post Wegener’s Granulomatosis, psoriatic arthritis, Ankylosing spondylitis, chronic migraines,

Notes:

  • You can “fire” your doctor if they are not taking your concerns seriously

  • I don’t want a diagnosis and we don’t want to be sick but we do want to be able to have the correct treatment, which can only happen with the right diagnosis

  • Even when you have a diagnosis, it may take a to find a treatment that works and it may work well for you now but that could change

  • Have things that you need close to you whether you set up a mini kitchenette or you have a bag that has your essentials you keep with you all the time, it is important to have what you need around you

  • Bearable - medication and symptom tracker app

  • Hang in there

  • Keep going, don’t give up

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