S1E8: How to Tell Family and Friends You Have MS
My MS Podcast11 Okt 2023

S1E8: How to Tell Family and Friends You Have MS

You're scared to tell people that you have Multiple Sclerosis. How they'll react?Will they start see you differently? You don't want things to change. But you're also feeling so alone trying to keep it a secret. Opening up about your diagnosis isn't easy. You feel vulnerable and that can be really uncomfortable. I've been there. As an extremely guarded person, I built a wall… higher and thicker than any wall I had built before. But then the isolation felt worse than the fear of telling people. No matter which way I turned, it felt painful. But eventually I got the courage to start telling family and friends… one conversation at a time. Join me in this episode as I share the best strategies for breaking the news, handling reactions, and creating boundaries moving forward.

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Episoder(95)

S11E2: Your Biggest Win This Summer (And Why You're Not Celebrating It)

S11E2: Your Biggest Win This Summer (And Why You're Not Celebrating It)

Before we jump into today's episode, I want to ask you a question. What was your biggest win this summer? If your first thought was... "Honestly... I don't know." You're not alone. Last week, on one o...

4 Aug 21min

S11E1: Uhthoff's Phenomenon: Why Heat Makes MS Worse and How to Still Enjoy Summer

S11E1: Uhthoff's Phenomenon: Why Heat Makes MS Worse and How to Still Enjoy Summer

Last week I went viral on Instagram. A carousel I posted reached more than 65,000 people. And more than 1,500 people shared it. Fifteen thousand people sent this post about MS to a friend or family me...

8 Jul 32min

S10E7: What 10,000 Women Taught Me About Living With MS

S10E7: What 10,000 Women Taught Me About Living With MS

Ten years ago, I was terrified MS would take away my dreams. Not just my health. My dreams. The life I had worked so hard to build. I spent years watching other people achieve the goals I wanted. Grow...

30 Jun 29min

S10E6: Stable but Symptomatic: What Your MRI Results Actually Mean

S10E6: Stable but Symptomatic: What Your MRI Results Actually Mean

My MRI results are in. And I'm incredibly grateful to tell you that 10 years after my diagnosis, everything remains stable. But after sharing the good news, I found myself wondering something I think ...

17 Jun 21min

S10E5: 10 Years Later, MRI Results Still Scare Me

S10E5: 10 Years Later, MRI Results Still Scare Me

Ten years after my diagnosis, I still get nervous about MRIs. No matter how stable I've been, there's always that fear that they'll find something. A new or active lesion. And it'll be the best start ...

10 Jun 19min

S10E4 How to Stop Asking What If It Gets Worse?

S10E4 How to Stop Asking What If It Gets Worse?

Every flicker of a symptom. Every MRI. Every "what if it gets worse." We tell ourselves we're just being realistic — but there's a difference between preparing for possibilities and emotionally rehear...

3 Jun 11min

S10E3: Fantasy You is Exhausting Real You

S10E3: Fantasy You is Exhausting Real You

Your ambition survived the diagnosis… but your energy didn't. In this raw and deeply honest episode, I'm talking about the emotional reality of trying to live at your pre-MS pace while managing MS fat...

27 Mai 24min

S10E2 My New Rule for Holiday Weekends with MS

S10E2 My New Rule for Holiday Weekends with MS

I used to think holiday weekends would help me "catch up." Instead, they usually left me more exhausted. In this episode, I'm sharing the deeper realization I've been having about MS fatigue, overfunc...

20 Mai 23min

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