Bridging Two Countries, One Mission: Cesar and Nora Hernandez

Bridging Two Countries, One Mission: Cesar and Nora Hernandez

Bridging Two Countries, One Mission: Cesar and Nora Hernandez Fight for Spanish-Speaking CF Families

“When Alex was diagnosed, we felt fear and responsibility. If we had access to information in Spanish, other families should too. No one should feel lost because of language.” Nora Hernandez

From Mexico to Mission: How Cesar and Nora Hernandez Are Closing the CF Information Gap for Hispanic Families.

“I came to this country to build a better future for my family. I never imagined that future would include fighting for awareness about cystic fibrosis, but now it’s part of our mission.” Cesar Hernandez

Cesar and Nora Hernandez were both born in Mexico, where accurate and accessible information about cystic fibrosis has not always been readily available. While progress is being made, with more experienced physicians and improving CF care, there is still significant work to do.

In the United States, members of the Hispanic community are often underdiagnosed or diagnosed later than others. That gap in awareness and access is one of the reasons The Bonnell Foundation launched its CF Familia page, offering reliable information in both English and Spanish to help families navigate the complexities of cystic fibrosis.

Cesar and Nora serve as ambassadors for this effort, creating videos that provide education, updates, and reassurance to Spanish-speaking families. Cesar also serves as a board member of The Bonnell Foundation, and we are deeply grateful for his leadership and heart for this community.

Cesar originally came to the United States to build a better life and financially support his family in Mexico. After meeting Nora, he made the decision to stay and make the U.S. his permanent home. Together, they are raising two children, Scarlett and Alex, who was diagnosed with cystic fibrosis.

Their story is one of resilience, faith, cultural pride, and advocacy.

Transcript is also available on this podcast.

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(204)

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay on Radio, Podcasting, and the Art of Storytelling

Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting...

29 Jun 48min

Running changed and saved her life - Katie O'Grady inspires

Running changed and saved her life - Katie O'Grady inspires

"Many people have their own thing that lights them on fire, for me, it's running" say Katie O'Grady.  CF modulator drugs changes are a game changer for people living with cystic fibrosis. Katie O’Grad...

22 Jun 38min

Final Breath, First New Life: Jillian’s Transplant Journey

Final Breath, First New Life: Jillian’s Transplant Journey

“Take in your final breath before your first new one.”  Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of anot...

15 Jun 26min

Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but mo...

8 Jun 58min

Failure, Grit, and Breakthroughs with Dr. Tom Kaiser

Failure, Grit, and Breakthroughs with Dr. Tom Kaiser

“Behind every breakthrough are countless failures no one ever sees—but that’s exactly what makes progress possible.” Dr. Thomas Kaiser. When I have scientists on the podcast: they’re some of the coole...

1 Jun 42min

Christopher Cornejo, late diagnosis with CF

Christopher Cornejo, late diagnosis with CF

Living Fully with CF: Christopher Cornejo’s Journey from Diagnosis to Avatar This fast-moving and deeply engaging conversation features Christopher Cornejo, who brings a fresh and powerful voice to ...

25 Mai 36min

No Time to Wait: Beth Vanstone’s Fight for Access via Advocacy

No Time to Wait: Beth Vanstone’s Fight for Access via Advocacy

A mother, advocate and one woman's global fight for access. Beth Vanstone is working to ensure rare disease patients don’t have to wait for the treatments they need to survive. Sometimes the most powe...

18 Mai 45min

Populært innen Fakta

fastlegen
dine-penger-pengeradet
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
foreldreradet
jakt-og-fiskepodden
treningspodden
rss-kunsten-a-leve
mikkels-paskenotter
rss-strid-de-norske-borgerkrigene
rss-kull
rss-sarbar-med-lotte-erik
smart-forklart
sinnsyn
gravid-uke-for-uke
rss-bisarr-historie
teknologi-og-mennesker
level-up-med-anniken-binz
hverdagspsyken
lederskap-nhhs-podkast-om-ledelse
rss-var-forste-kaffe