Jon Gay on Radio, Podcasting, and the Art of Storytelling
Jon Gay and I had a great time recording this podcast because we not only talked about podcasting, but also reflected on our years in the broadcast business and what people should know before starting...
29 Jun 48min
Running changed and saved her life - Katie O'Grady inspires
"Many people have their own thing that lights them on fire, for me, it's running" say Katie O'Grady. CF modulator drugs changes are a game changer for people living with cystic fibrosis. Katie O’Grad...
22 Jun 38min
Final Breath, First New Life: Jillian’s Transplant Journey
“Take in your final breath before your first new one.” Those were the words Jillian heard before her double lung transplant—words that would mark the end of one life chapter and the beginning of anot...
15 Jun 26min
Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.
Chrisy and Dr. Kingzett, two women I met when we were all trying to raise our rare voices a little louder. Christine “Chrisy” Klavitter and Dr. Kristen Kingzett are both rare disease advocates, but mo...
8 Jun 58min
Failure, Grit, and Breakthroughs with Dr. Tom Kaiser
“Behind every breakthrough are countless failures no one ever sees—but that’s exactly what makes progress possible.” Dr. Thomas Kaiser. When I have scientists on the podcast: they’re some of the coole...
1 Jun 42min
Christopher Cornejo, late diagnosis with CF
Living Fully with CF: Christopher Cornejo’s Journey from Diagnosis to Avatar This fast-moving and deeply engaging conversation features Christopher Cornejo, who brings a fresh and powerful voice to ...
25 Mai 36min
No Time to Wait: Beth Vanstone’s Fight for Access via Advocacy
A mother, advocate and one woman's global fight for access. Beth Vanstone is working to ensure rare disease patients don’t have to wait for the treatments they need to survive. Sometimes the most powe...
18 Mai 45min
Bridging Two Countries, One Mission: Cesar and Nora Hernandez
Bridging Two Countries, One Mission: Cesar and Nora Hernandez Fight for Spanish-Speaking CF Families “When Alex was diagnosed, we felt fear and responsibility. If we had access to information in Spani...
11 Mai 42min
