Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(206)

Making medical moments less scary thanks to Abby Rose (Child Life Specialist)

Making medical moments less scary thanks to Abby Rose (Child Life Specialist)

“What if a blood draw didn’t have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you’re goin...

16 Mar 42min

Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd

Diagnosed at 50: When Answers Come Decades Late, Sheri Boyd

Diagnosed with cystic fibrosis at the age of fifty, Sheri Boyd brings a rare and powerful perspective to the CF community, one shaped by decades of undiagnosed illness, years of caregiving, deep resil...

9 Mar 45min

"Patients are waiting." Steve St. Onge with Clarameytx

"Patients are waiting." Steve St. Onge with Clarameytx

“Patients are waiting…”Those simple but profound words from Dr. Steve St. Onge set the tone for this conversation, and for why this work matters so deeply.Science has always fascinated me. I often jok...

2 Mar 31min

"Ever moment, every day is worth celebrating." Somer Love

"Ever moment, every day is worth celebrating." Somer Love

"Ever moment, every day is worth celebrating." Somer LoveSomer Love has spent her life choosing hope, dreaming big, and showing up fully for each day. Diagnosed with cystic fibrosis at just 11 months ...

23 Feb 45min

When Insurance Gets Between Doctors and Patients

When Insurance Gets Between Doctors and Patients

When Insurance Gets Between Doctors and PatientsDr. Elizabeth Ames and Dr. Caleb Bupp are deeply committed to their patients. But like so many clinicians today, they’re spending an extraordinary amoun...

16 Feb 44min

Impacting CF with science: Dr. Jeffry Weers

Impacting CF with science: Dr. Jeffry Weers

Innovating Medicine: How Science, Collaboration, and Curiosity Transform Patient CareIt is always inspiring to speak with true innovators on this podcast, the people who don’t just follow the science,...

9 Feb 34min

Daelyn James: Embracing the Fight

Daelyn James: Embracing the Fight

Daelyn James, is someone who understands the power of owning your story. Diagnosed with cystic fibrosis at just four years old, she remembers what it felt like to go from a carefree childhood to one f...

2 Feb 33min

65 Miles of Hope with Chad Eddy

65 Miles of Hope with Chad Eddy

Running for Time: Chad Eddy’s Mission Against Cystic FibrosisFor Chad Eddy, the fight against cystic fibrosis isn’t abstract, it's personal. He’s the proud uncle of two nieces born with CF. One is sti...

26 Jan 30min

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