Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(209)

Impacting CF with science: Dr. Jeffry Weers

Impacting CF with science: Dr. Jeffry Weers

Innovating Medicine: How Science, Collaboration, and Curiosity Transform Patient CareIt is always inspiring to speak with true innovators on this podcast, the people who don’t just follow the science,...

9 Feb 34min

Daelyn James: Embracing the Fight

Daelyn James: Embracing the Fight

Daelyn James, is someone who understands the power of owning your story. Diagnosed with cystic fibrosis at just four years old, she remembers what it felt like to go from a carefree childhood to one f...

2 Feb 33min

65 Miles of Hope with Chad Eddy

65 Miles of Hope with Chad Eddy

Running for Time: Chad Eddy’s Mission Against Cystic FibrosisFor Chad Eddy, the fight against cystic fibrosis isn’t abstract, it's personal. He’s the proud uncle of two nieces born with CF. One is sti...

26 Jan 30min

Guiding through Grief with Jennifer Frush

Guiding through Grief with Jennifer Frush

When Jennifer joined New Hope in 2018, she didn’t just take a job — she stepped into a calling. What began as a role coordinating outreach and events quickly became a mission to change how communities...

19 Jan 35min

A Rockstar Scientist meet Dr. Colin Hemez

A Rockstar Scientist meet Dr. Colin Hemez

A black leather jacket, black hoop earrings, black T-shirt and pants. You may visualize a rock star, and Colin Hemez is a rock star of sorts, but he actually works in a white coat, a doctors coat. Yes...

12 Jan 42min

Breath by Breath: contributions of Dr. Michael Welsh

Breath by Breath: contributions of Dr. Michael Welsh

Breath to Breath Film that celebrates the contributions by Dr. Michael WelshA Conversation with Dr. Michael Welsh: The Science That is Saving LivesIt’s always such a privilege to feature CF icons on t...

5 Jan 37min

Life with CF Without Phones, Electricity, or Transplants

Life with CF Without Phones, Electricity, or Transplants

What does it mean to live with cystic fibrosis (CF) in Amish and Mennonite communities, where many families don’t use phones, computers, or even electricity? For some, this means relying on handwritte...

24 Nov 202540min

A CF Mom, Summer Bauder,  delivering hope across Continents.

A CF Mom, Summer Bauder, delivering hope across Continents.

Delivering Hope across Continents. The why and how Summer Bauder got involved with CF Vests Worldwide.Summer Bauder is a remarkable woman whose story embodies compassion, perseverance, and global impa...

17 Nov 202533min

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