The Anomaly: living off donated organs and dark humor by Inka Nisinbaum

The Anomaly: living off donated organs and dark humor by Inka Nisinbaum

What would you do if you didn't know what your future held?

For people living with cystic fibrosis, uncertainty is often a constant companion. Inka Nisinbaum faced one of the biggest unknowns of her life as she waited 15 months for a double lung and liver transplant. Every day brought the same question: Would she survive long enough to receive the gift of new organs?

Rather than let fear define her, Inka prepared for every possibility. She created a list of dreams she would pursue if she lived and a bucket list in case she didn't.

Then she did something even more powerful—she fought. She refused to give up, pushed through impossible challenges, and ultimately built a life beyond what anyone thought possible. Her story is a reminder that while we can't always control the future, we can choose how we face it.

Born with cystic fibrosis and given just four years to live, Inka Nisinbaum defies every expectation. At 22, she survives a rare double lung and liver transplant after waiting more than a year for a donor, beginning a long and difficult recovery that eventually gives her nearly 17 years of stability.

But in 2019, she’s hit again with chronic lung rejection—what she calls a “second death sentence.” With her lung function rapidly declining, she fights back the only way she knows how: by running.

Starting from just one minute at a time—even while hospitalized with a PICC line, she slowly rebuilds her strength and goes on to complete a half marathon. Against the odds, her lung function stabilizes and she regains her life again.

Her journey becomes even more extraordinary as she moves to the U.S., gets married, and becomes the first woman known to have a baby after a double lung and liver transplant.

To buy her book: https://read.amazon.com/sample/B0H1SFYZCH?clientId=share

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Episoder(208)

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CF Scholars: Stories of Determination

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Jon Gay on Radio, Podcasting, and the Art of Storytelling

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Running changed and saved her life - Katie O'Grady inspires

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Final Breath, First New Life: Jillian’s Transplant Journey

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Rare, But Not Invisible: Chrisy and Dr. Kingzett talk advocacy.

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