Jan 1, 2 AM, 2026
photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm ex...
1 Jan 17min
pt 2 my op-ed Canary UK
My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...
20 Des 20252min
My CanaryUK op-ed is out
My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...
19 Des 20252min
Merry Merry
where I talk about pushing my energy envelope so that I can have some good experiences in the face of all the hardship I'm going through. yeah it's making my pain and exhaustion dramatically worse but...
18 Des 202514min
The Fine Art Of Distraction
where I talk about The fine art of distraction, a particularly bad episode of pain, the perils of not having housekeeping supports, fear around running out of the GoFundMe money that I use for treatme...
17 Des 202510min
Sinterklaas
where I talk about an op-ed I'm in the final edit stages (Yes I'll post it the minute it's up in a new episode) And I talk about Sinterklaas, celebration of the name day of St Nicholas, December 6th. ...
5 Des 202546min
preparation is the better part of valor
to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of...
1 Des 202524min
part 2 One thing after another
I got in after doing part one and still had a lot to say and still have some pretty high level feelings about they're just being far too many one thing after the other levels of difficulty that keep c...
9 Nov 202514min
