New Year; Renewed Battle!
I AM MADELINE4 Jan 2024

New Year; Renewed Battle!

In which I talk about how I navigated the holiday season and the advocacy and healthcare battles I'm facing in the next couple of months. I do also finally talk about the nightmare suite inspection and of course that they are coming back in March even though I did everything they asked me to do. Let's just say I have thoughts and feelings about that🤨🫤. I also talk about how that inspection has precipated mass hair loss to the tune of half of my hair and counting. That's got my nurse practitioner worried, and me too! It's an indicator that my body is struggling so much that it's deprioritized energy to hair all over my body. This happened once before and precipitated my avalanche deterioration so I'm scared For anyone looking for the link to share here once again is the GoFundMe https://gofund.me/cff39173 and the ricochet article https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty along with the tweet thread that the journalist did so you can share it on Canadian social media https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19 plus the YouTube channel https://youtube.com/@IamMadelinePod?feature=shared as I do now have some episodes recently created The photo is of a Christmas present, a 3D printed miniature of the Moon that lights up. It makes me nerd girl happy🤓👩‍🏫. It was hard to take a picture of so I cradled it in my lap that's why it looks like a new moon

Episoder(143)

Energy Overdrawn

Energy Overdrawn

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025...

9 Jan 9min

Jan 1, 2 AM, 2026

Jan 1, 2 AM, 2026

photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm ex...

1 Jan 17min

pt 2 my op-ed Canary UK

pt 2 my op-ed Canary UK

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

20 Des 20252min

My CanaryUK op-ed is out

My CanaryUK op-ed is out

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www...

19 Des 20252min

Merry Merry

Merry Merry

where I talk about pushing my energy envelope so that I can have some good experiences in the face of all the hardship I'm going through. yeah it's making my pain and exhaustion dramatically worse but...

18 Des 202514min

The Fine Art Of Distraction

The Fine Art Of Distraction

where I talk about The fine art of distraction, a particularly bad episode of pain, the perils of not having housekeeping supports, fear around running out of the GoFundMe money that I use for treatme...

17 Des 202510min

Sinterklaas

Sinterklaas

where I talk about an op-ed I'm in the final edit stages (Yes I'll post it the minute it's up in a new episode) And I talk about Sinterklaas, celebration of the name day of St Nicholas, December 6th. ...

5 Des 202546min

preparation is the better part of valor

preparation is the better part of valor

to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of...

1 Des 202524min

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