Overcoming Denial, Confronting Food Phobia, and Embracing Online Communities: Ray’s AS and OA Story
Arthritis Life28 Mar 2024

Overcoming Denial, Confronting Food Phobia, and Embracing Online Communities: Ray’s AS and OA Story

Trigger warning: orthorexia / eating disorders; fear of foods

In Episode 122, Ray shares the shock and emotional turmoil he experienced upon receiving his diagnoses of rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA). He described the initial denial he felt and the process of coming to terms with his diagnoses, acknowledging the emotional toll it took on him and his family.

Cheryl and Ray discuss coping strategies, the role of social media, and finding a supportive community online. He also explains the importance of advocating for oneself and seeking out reliable information and resources, taking a proactive approach to managing his conditions, and finding the right balance between pushing through pain and listening to his body's needs.

Episode at a glance:
  • Diagnosis Story: Ray describes his diagnoses and experience living with rheumatoid arthritis (RA), ankylosing spondylitis (AS), and osteoarthritis (OA).
  • Navigating Multiple Conditions: Ray explains the complexities of living with multiple chronic illnesses, including challenges related to symptom management, accessing healthcare, and adjusting to lifestyle changes.
  • Social Support and Connection: Cheryl and Ray discuss the significance of social support networks, in providing connection and understanding for individuals living with rheumatic diseases.
  • Self-Advocacy and Empowerment: Ray emphasizes the importance of self-advocacy and seeking out reliable information and resources to empower oneself in managing chronic illnesses
  • Acceptance and Resilience: Ray shares insights into his journey from feelings of denial to acceptance and living a fulfilling life despite health challenges.
Medical disclaimer:

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!

For full episode details including a transcript & video:

Go to the episode page (coming soon) on the Arthritis Life website.


Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Denne episoden er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(218)

Rheumer Has It: Busting Medication Myths with Dr. Hazelwood: Encore Episode

Rheumer Has It: Busting Medication Myths with Dr. Hazelwood: Encore Episode

Dr. Hazelwood emphasizes the importance of balancing risks and benefits and provides insights into how modern treatments can significantly improve quality of life. The episode emphasizes the safety an...

2 Jul 24min

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

Becoming Immune Confident with Sjogren’s & MCAS, with Dr. Kara Wada

In this empowering conversation, Cheryl  and Dr. Kara Wada explore what it means to take charge of your health with conditions like Sjögren’s syndrome and mast cell activation syndrome (MCAS). Dr Kara...

18 Jun 1h 7min

Exploring the Intersection of Cancer and Rheumatoid Arthritis, with Dr. Singh

Exploring the Intersection of Cancer and Rheumatoid Arthritis, with Dr. Singh

They also explore exciting new therapies like CAR T-cell treatment, along with practical advice on self-advocacy, building the right healthcare team, and what it truly means to thrive while living wit...

4 Jun 44min

Rheumer Has It:  Role of the Multidisciplinary Team in Rheumatic Disease: OT, PT, Counseling and More!

Rheumer Has It: Role of the Multidisciplinary Team in Rheumatic Disease: OT, PT, Counseling and More!

They explain how occupational therapists, physical therapists, mental health professionals, pharmacists, and others can help you manage fatigue, pain, anxiety, daily routines, and life after diagnosis...

21 Mai 29min

Pregnancy, Postpartum & Parenting with Rheumatoid Arthritis, with Mariah Leach

Pregnancy, Postpartum & Parenting with Rheumatoid Arthritis, with Mariah Leach

Cheryl and Mariah discuss everything from medication decisions during pregnancy to adapting family life, traveling with chronic illness, managing expectations, and finding “micro moments” of joy along...

7 Mai 43min

Body Weather: Making Sense of Chronic Illness in an Unpredictable Body

Body Weather: Making Sense of Chronic Illness in an Unpredictable Body

She shares her complex diagnostic journey across multiple autoimmune and inflammatory conditions, highlighting the uncertainty and overlap many patients experience. Cheryl and Lorraine discuss shiftin...

21 Apr 1h 4min

Introducing New Rheum to THRIVE Facilitators Gittel Aguilar & Eileen!

Introducing New Rheum to THRIVE Facilitators Gittel Aguilar & Eileen!

Eileen and Gittel talk about why they’re passionate about leading support spaces, what those groups are really like (spoiler: welcoming, not intimidating), and how connection can make a huge differenc...

15 Apr 46min

Making Movement Accessible with Inflammatory Arthritis, with Jamie Boder

Making Movement Accessible with Inflammatory Arthritis, with Jamie Boder

The conversation also dives into the emotional side of chronic illness, including fear of movement, the importance of interoception (body awareness), and how to avoid the boom–bust cycle of overdoing ...

2 Apr 59min

Populært innen Fakta

fastlegen
dine-penger-pengeradet
relasjonspodden-med-dora-thorhallsdottir-kjersti-idem
foreldreradet
rss-kunsten-a-leve
treningspodden
mikkels-paskenotter
rss-strid-de-norske-borgerkrigene
jakt-og-fiskepodden
hverdagspsyken
sinnsyn
rss-var-forste-kaffe
level-up-med-anniken-binz
tomprat-med-gunnar-tjomlid
rss-impressions-2
gravid-uke-for-uke
uroskolen
fryktlos
rss-bisarr-historie
diagnose