Living With Cystic Fibrosis6 Jan 2025

Rare Disease Diversity, Jenifer Waldrop

I encourage everyone to attend conferences when you can. I meet the most interesting experts in the field of the nonprofit world. From scientists, to pharma, to other nonprofit execs like me. I was thrilled to meet Jenifer Waldrop. She joined the Black Women’s Health Imperative as the Executive Director of the Rare Disease Diversity Coalition (RDDC) in October 2022.

The organization address challenges faced by rare disease patients of color. They bring together rare disease experts, health and diversity experts.

Their Vision: a world without health disparities in rare disease patients’ communities.

Mission: to address the extraordinary challenges face by historically underrepresented rare disease patients as encompassed by social determinants of health (SDOH). Jenifer volunteers as the Professional Development Director of the National Association of Asian American Professionals (NAAAP) of Colorado.

Find more here: Rarediseasediversity.org

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