The jjsegment

In this episode of the JJsegment Jess reflects back to the last episode. Treating FND as A whole and the importance of finding out and researching what FND is. Also exploring the possibilities of work with FND and Disability.

Follow Jess on Instagram @functionallyjess for educational information / slides / posts about FND

INFORMATION AND LINKS TO CHECK OUT

Effective connectivity between emotional and motor brain regions in people with PNES

https://www.sciencedirect.com/science/article/abs/pii/S152550502100319X?fbclid=IwAR1ZiuEOwdx2jfR1d8O7Xo3q1CJOUKcSZ1NndF-F0dqtmqs_OpPgsENGJQo

WORK AND DISABILITY

As promised here are some links and information about working with a disability.

https://www.disabilitygateway.gov.au/employment

Know your rights in your work:

https://www.disabilitygateway.gov.au/employment/rights

especially if you feel that you are discriminated against:

https://www.jobaccess.gov.au/people-with-disability/your-rights-and-responsibilities

To listen to our song playlist started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is:

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment.

Other podcasts to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND.