58: Advocating For Rare Disease with Chelsea Streit   (S2 E25)

58: Advocating For Rare Disease with Chelsea Streit (S2 E25)

In this inspiring episode of Autoimmune Adventures, hosts Stacy, Becky, and Alysia sit down with Chelsea Streit, a passionate rare disease advocate living with Cowden Syndrome and Sjögren’s Syndrome. Chelsea shares her powerful story of navigating chronic illness, emotional healing, and the small victories that make each day meaningful.

From the heartbreak of diagnosis to finding love, purpose, and advocacy, Chelsea’s journey shines a light on the resilience and courage of the chronic illness community. She opens up about how she manages flare days, balances rest with productivity, and uses creative hobbies and practical tools to find hope and healing.

💬 In this episode, we discuss:

  • How small victories can transform your chronic illness mindset

  • Emotional healing and stress management for autoimmune and rare diseases

  • Tools, hobbies, and routines that make hard days easier

  • The power of self-advocacy and community support

  • How Chelsea turned pain into purpose and found connection through advocacy

If you’re living with autoimmune disease, chronic illness, or a rare condition, this conversation will remind you that healing is not about perfection — it’s about persistence, purpose, and grace.

Subscribe to Autoimmune Adventures for more real stories of resilience, advocacy, and living well with chronic illness.

#AutoimmuneAdventures #ChelseaStreit #CowdenSyndrome #SjogrensSyndrome #RareDiseaseAdvocacy #ChronicIllnessWarrior #AutoimmuneAwareness #PatientAdvocacy #ChronicIllnessSupport #HealingJourney #SelfCare #RestAndRecovery #InvisibleIllness #MentalHealthAndChronicIllness #ResilienceAndHope

Episoder(75)

27: Infertility and Miscarriage: The Unseen Ascent (S1 EP 27)

27: Infertility and Miscarriage: The Unseen Ascent (S1 EP 27)

Struggling with infertility and miscarriage can be an incredibly painful and isolating journey, especially for those with autoimmune diseases. In this episode we discuss the complex connection between...

18 Feb 202523min

26: Navigating the Landscape of Sex and Intimacy (S1 EP 26)

26: Navigating the Landscape of Sex and Intimacy (S1 EP 26)

Autoimmune and chronic illnesses can impact libido and intimacy through hormonal imbalances, fatigue, pain, and mental health challenges. In this episode, we discuss these effects and share practical ...

10 Feb 202521min

25: Trail Trolls (S1 EP 25)

25: Trail Trolls (S1 EP 25)

Let’s face it—trolls are everywhere, and those of us with autoimmune conditions aren’t immune to their ignorance. 🚫 But here’s the truth: Trolls gonna troll. We hold the power to grant grace where it...

3 Feb 202528min

24: Sweet Poison: How Sugar Affects Our Climb (S1 EP 24)

24: Sweet Poison: How Sugar Affects Our Climb (S1 EP 24)

Today we tackle a crucial topic: the hidden dangers of sugar for those of us with autoimmunity. Sugar can be a silent saboteur, triggering inflammation, weakening our immune response, and exacerbating...

28 Jan 202521min

23: Trail Buddies: Children of Autoimmune Parents (S1 EP 23)

23: Trail Buddies: Children of Autoimmune Parents (S1 EP 23)

Join our kids as they explore what it’s like for children to grow up with a parent who has an autoimmune disease. Through heartfelt questions, we uncover how they perceive the condition, manage their ...

21 Jan 202529min

22: Pets, Paws, and Wellness (S1 EP22)

22: Pets, Paws, and Wellness (S1 EP22)

Explore how pets can boost physical and emotional well-being, especially for those with autoimmune diseases. From reducing stress to promoting physical activity, pets offer numerous health benefits. W...

14 Jan 202524min

21: Overcoming Perfection (S1 EP 21)

21: Overcoming Perfection (S1 EP 21)

Explore the struggle with perfectionism and its unique challenges, especially for those navigating autoimmune conditions. The pressure to be flawless is ever-present in our social media-driven world, ...

7 Jan 202523min

20: Maximizing Energy: Habit Stacking and Time Blocks (S1 EP 20)

20: Maximizing Energy: Habit Stacking and Time Blocks (S1 EP 20)

Join us to learn about managing energy with habit stacking and time blocking. Come learn how to maximize your energy, reduce mental fatigue, and stay productive throughout the day. From tackling the n...

31 Des 202431min

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