58: Advocating For Rare Disease with Chelsea Streit   (S2 E25)

58: Advocating For Rare Disease with Chelsea Streit (S2 E25)

In this inspiring episode of Autoimmune Adventures, hosts Stacy, Becky, and Alysia sit down with Chelsea Streit, a passionate rare disease advocate living with Cowden Syndrome and Sjögren’s Syndrome. Chelsea shares her powerful story of navigating chronic illness, emotional healing, and the small victories that make each day meaningful.

From the heartbreak of diagnosis to finding love, purpose, and advocacy, Chelsea’s journey shines a light on the resilience and courage of the chronic illness community. She opens up about how she manages flare days, balances rest with productivity, and uses creative hobbies and practical tools to find hope and healing.

💬 In this episode, we discuss:

  • How small victories can transform your chronic illness mindset

  • Emotional healing and stress management for autoimmune and rare diseases

  • Tools, hobbies, and routines that make hard days easier

  • The power of self-advocacy and community support

  • How Chelsea turned pain into purpose and found connection through advocacy

If you’re living with autoimmune disease, chronic illness, or a rare condition, this conversation will remind you that healing is not about perfection — it’s about persistence, purpose, and grace.

Subscribe to Autoimmune Adventures for more real stories of resilience, advocacy, and living well with chronic illness.

#AutoimmuneAdventures #ChelseaStreit #CowdenSyndrome #SjogrensSyndrome #RareDiseaseAdvocacy #ChronicIllnessWarrior #AutoimmuneAwareness #PatientAdvocacy #ChronicIllnessSupport #HealingJourney #SelfCare #RestAndRecovery #InvisibleIllness #MentalHealthAndChronicIllness #ResilienceAndHope

Episoder(76)

20: Maximizing Energy: Habit Stacking and Time Blocks (S1 EP 20)

20: Maximizing Energy: Habit Stacking and Time Blocks (S1 EP 20)

Join us to learn about managing energy with habit stacking and time blocking. Come learn how to maximize your energy, reduce mental fatigue, and stay productive throughout the day. From tackling the n...

31 Des 202431min

19:  The Unfinished Nativity - A Christmas Eve Storytime (S1 EP 19)

19: The Unfinished Nativity - A Christmas Eve Storytime (S1 EP 19)

This Christmas Eve, we're excited to share a special storytime episode featuring a heartfelt tale written by Becky: The Unfinished Nativity. This beautiful tribute honors our mother’s incredible labor...

24 Des 202424min

18: Navigating the Trail Together with Your Partner (S1 EP 18)

18: Navigating the Trail Together with Your Partner (S1 EP 18)

Join us as we explore the real, raw, and heartfelt experiences of living with a partner who has an autoimmune disease. Our husbands are here to discuss the challenges, emotions, and triumphs of being ...

17 Des 202438min

17: Paradoxes: The Yin and Yan of Autoimmunity (S1 EP 17)

17: Paradoxes: The Yin and Yan of Autoimmunity (S1 EP 17)

Enter the fascinating world of paradoxes in autoimmunity — those mind-bending situations where your immune system, designed to protect you, turns on itself. We'll explore these contradictions, from th...

10 Des 202431min

16: Overcoming Fatigue in Autoimmunity (S1 EP 16)

16: Overcoming Fatigue in Autoimmunity (S1 EP 16)

Today, we're tackling a challenge many living with autoimmune diseases face: fatigue. Whether it’s the constant exhaustion or those sudden energy crashes, autoimmune fatigue can take a serious toll. T...

3 Des 202430min

15 - Depression and Anxiety (S1 EP 15)

15 - Depression and Anxiety (S1 EP 15)

We tackle a crucial topic: the connection between autoimmune disease and mental health. We'll discuss the prevalence of depression and anxiety among individuals with autoimmune conditions, and explore...

26 Nov 202432min

14: Dave Piontkowski: A Three Kidney Strong, Colitis Conquering Comedian (S1 EP 14)

14: Dave Piontkowski: A Three Kidney Strong, Colitis Conquering Comedian (S1 EP 14)

We're thrilled to have the hilarious and inspiring Dave Piontkowski as our guest. Dave, the comedian behind the show "3 Kidneys No Colon," shares his journey with chronic kidney disease and ulcerative...

19 Nov 202431min

13: Festive Wellness: Navigating the Holidays (S1 EP 13)

13: Festive Wellness: Navigating the Holidays (S1 EP 13)

The holiday season can be a magical time filled with joy, laughter, and love. However, for those living with autoimmune conditions, it can also be a source of stress and anxiety. We'll discuss strateg...

12 Nov 202430min

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