Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(210)

All of Us - Science, Innovation and YOU.

All of Us - Science, Innovation and YOU.

A better future for health for: All of Us!Dr. Josh Denny is the All of Us Research program, CEO. A program that comes from the National Institute of Health.  The Bonnell Foundation is all about Scienc...

4 Mar 202439min

CF Trust, U.K. with Belinda Cupid

CF Trust, U.K. with Belinda Cupid

(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you)Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundati...

26 Feb 202440min

Healthwell again open to CF patients

Healthwell again open to CF patients

This is our third podcast with Alan Klein, the Chief Development Officer Healthwell. As a reminder Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the ...

19 Feb 202419min

The extraordinary, Nick Kelly.

The extraordinary, Nick Kelly.

(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you)What a treat for all of us today.  Nicholas Kelly is in the house. I've wanted him on our podcast for a...

12 Feb 202444min

Karen McEwan and Laura bond over chronic illness

Karen McEwan and Laura bond over chronic illness

Karen McEwan’s daughter, Elana, is 20 years old.  It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD).  This is the fi...

5 Feb 202445min

Two Salty Okes, Rena Barrow's story

Two Salty Okes, Rena Barrow's story

Rena Barrow has two kids with CF, Jarrod is 22 and Jahsir is 3 years old. Over the years she’s witnessed a discrepancy in care for people of color.  Even after her 22 year old son was diagnosed, docto...

29 Jan 202440min

Dr. Susanna McColley talks health equity

Dr. Susanna McColley talks health equity

I am excited that all of you will get to meet  Dr. Susanna McColley!!!!  I was so impressed with her commitment to CF and her incredible medical and life knowledge.  Dr. McColley works to promote equi...

22 Jan 202454min

CF Woman climbs Kilimanjaro (Caroline Heffernan)

CF Woman climbs Kilimanjaro (Caroline Heffernan)

Caroline Heffernan talks to CF families about all sorts of things, employment, family support, housing issues, cross infection, fertility…you name it. Caroline talks all things CF.  As someone with CF...

15 Jan 202444min

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