Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Episoder(206)

Singing, Acting and Advocacy: It's in Julia Rae's DNA!

Singing, Acting and Advocacy: It's in Julia Rae's DNA!

“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia RaeFrom the moment Julia Rae could speak, she was singing, and from the moment she could dream, she wa...

18 Aug 202539min

Sophie Holmes: 36 marathons in 36 days

Sophie Holmes: 36 marathons in 36 days

Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic FibrosisDespite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes ti...

4 Aug 202536min

Advocacy in Action: From the Front Lines

Advocacy in Action: From the Front Lines

“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to serve...

21 Jul 202552min

The power of yes: it saves lives (Mike Walters and Jason Vandiver)

The power of yes: it saves lives (Mike Walters and Jason Vandiver)

We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and J...

7 Jul 202547min

How to provide lung health everyday

How to provide lung health everyday

Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, she...

30 Jun 202540min

Personalized Mission: The Rosenau Family Foundation story

Personalized Mission: The Rosenau Family Foundation story

"Oh, the people you’ll meet, and the places you’ll go..."That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A quie...

16 Jun 202534min

Costco to Connection: Magazine to Mic with Michelle Glogovac

Costco to Connection: Magazine to Mic with Michelle Glogovac

From Costco to Connection: Podcast Advice That Changed EverythingWhen I spotted a feature on podcasting in The Costco Connection, I was excited. When I saw Michelle Glogovac featured? I knew I had to ...

2 Jun 202547min

Voices of Care: A Live and Unfiltered Conversation

Voices of Care: A Live and Unfiltered Conversation

Live from Mix and Mingle Education Day: A Powerful Conversation with CaregiversIn this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of ...

26 Mai 20251h 16min

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