Managing Your PV and Mental Health
On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health challenges faced by peo...
24 Sep 202529min
Self Advocacy in Polycythemia Vera: A Patient's Perspective
On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her ex...
20 Aug 202524min
Shared Decision Making in Polycythemia Vera
On this episode of the PV Pod, Josh and Kay discuss the critical importance of shared decision making in the treatment of polycythemia vera (PV). They are joined by Dr. Lucia Masarova from MD Anderson...
16 Jul 202529min
Talking to Friends & Family about PV
On this episode of the PV Pod, we dive into the experiences of Steven Ames, who shares his journey with polycythemia vera (PV). Diagnosed during the height of COVID-19, Steven discusses the challenges...
11 Jun 202533min
Managing Polycythemia Vera for the Long Term
On this episode of the PV Pod, hosts Josh and Kay engage in a detailed discussion with Dr. Solly Chedid about managing polycythemia vera (PV) over the long term. They explore symptoms, diagnosis, and ...
5 Mai 202518min
Dana's PV Journey: Research, Resilience & Mental Health
On the Season 2 premiere of the PV Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg introduce Dana, a therapist diagnosed with polycythemia vera (PV) at 35. Dana shares her unique diagno...
2 Apr 202522min
Grounded with Purpose: Ken Stein's Journey with PV
On the final episode of Season 1 of The PV Pod, we're in conversation with Ken Stein, a 77-year-old former pilot diagnosed with polycythemia vera (PV). Ken shares his diagnosis story, the impact of PV...
18 Feb 202521min
A Year in Review for Polycythemia Vera
On this episode, Josh and Kay recap the first year of 'The PV Pod: Stories from the Marrow', reflecting on key moments from their ten episodes. They discuss polycythemia vera (PV), including insights ...
15 Jan 202521min
