240: An Interview With Christine Clemson, PhD, of Entrada Therapeutics
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Christine Clemson, PhD, senior vice-president and global head of medical affairs at Entrada Therapeutics, about exon skipping th...
3 Sep 11min
239: An Interview With Avril Daly, President of Eurordis-Rare Diseases Europe
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Avril Daly, president of Paris-based Eurordis-Rare Diseases Europe, on how the EU is falling behind in clinical trials for rare ...
24 Aug 14min
238: An Interview With Jim Palma, CEO of TargetCancer
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jim Palma, CEO of the TargetCancer Foundation, a nonprofit organization that focuses on finding treatments for rare cancers.
19 Aug 9min
237: An Interview With Dr. Paul Esteso on Cardiac Health in Duchenne
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Duchenne expert Paul Esteso, MD, PhD, medical director of the cardiac antithrombosis management program at Boston Children's Hos...
11 Aug 11min
236: An Interview With Teresa Barnes, Founder of PF Warriors
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Teresa Barnes, founder of PF Warriors—a global support network that provides education, inspiration and hope to individuals and ...
3 Aug 12min
235: An Interview WIth Dr. Martina Cornel, President of the European Society of Human Genetics
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Martina Cornel, MD, PhD, about the importance of adopting standardized newborn screening for rare diseases throughout Europe.
27 Jul 16min
234: An Interview WIth Diane Zapursky Quale of the Bladder Cancer Advocacy Network
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Diane Zapursky Quale, who founded the Bladder Cancer Advocacy Network 20 years ago with her late husband after he developed blad...
20 Jul 14min
233: An Interview With AI Expert Dr. Laurah Turner on Artificial Intelligence in Medical Education
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Laurah Turner, PhD, associate dean for artificial intelligence and educational informatics at the University of Cincinnati Colle...
13 Jul 10min
