Rare Care Podcast

Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

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Episoder(259)

232: An Interview With John MacMahon, CEO of CytoKind, on the Benefits of Artificial Sunlight

232: An Interview With John MacMahon, CEO of CytoKind, on the Benefits of Artificial Sunlight

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews John MacMahon, a New Hampshire-based medical devices company that specializes in phototherapy to treat fatigue in people with mu...

6 Jul 16min

231: An Interview With Dr. Eric Small, Former President of ASCO

231: An Interview With Dr. Eric Small, Former President of ASCO

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Eric Small, MD, who recently stepped down as president of the American Society of Clinical Oncology (ASCO).

29 Jun 14min

230: An Interview With Jessie Dubief, Social Research Director at Eurordis, on Mental Health in Rare Diseases

230: An Interview With Jessie Dubief, Social Research Director at Eurordis, on Mental Health in Rare Diseases

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jessie Dubief, social research director of Eurordis, about the organization's new survey on the importance of addressing mental ...

23 Jun 13min

229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation

229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation

16 Jun 21min

229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation

229: An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Naomi Aziz, patient advocacy and engagement lead at the Endometrial Cancer Research Foundation. June is Uterine Cancer Awareness...

16 Jun 21min

228: An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society

228: An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michelle Ng Gong, MD, president of the American Thoracic Society (ATS). Dr. Gong formally replaced Raed Dweik, MD, at the ATS 20...

9 Jun 11min

227: An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation

227: An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrew Wilson, MD, scientific director of the Alpha-1 Foundation, about the latest therapies to treat alpha-1 antitrypsin defici...

31 Mai 7min

226: An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program

226: An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Vallerie McLoughlin, MD, director of the Pulmonary Hypertension Program at the University of Michigan-Ann Arbor, about results o...

26 Mai 9min

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