61: An Interview With Abigail Jenkins, President and CEO of Gamida Cell Ltd.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Abigail Jenkins, president and CEO of Gamida Cell Ltd., on the company's development of omidubicel as an alternative to umbilica...
19 Jan 202310min
60: An Interview With Peter Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD)
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Peter Saltonstall, president and CEO of the National Organization for Rare Disorders (NORD), on the 40th anniversary of the land...
11 Jan 202311min
59: An Interview With Sara Rothschild, Executive Director of the Life Raft Group
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sara Rothschild, the new executive director of the Life Raft Group, the nation's chief nonprofit advocating on behalf of patient...
9 Jan 202313min
58: An Interview With PJ Brooks, PhD, on the Bespoke Gene Therapy Consortium
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Philip J. Brooks, PhD, acting director of the Division of Rare Diseases Research Innovation at NCATS. Dr. Brooks describes the m...
29 Des 20229min
57: An Interview With Scott Santarella, President and CEO of the Alpha-1 Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Scott Santarella, the new president and CEO of the Miami-based Alpha-1 Foundation—the nation's largest organization working on b...
9 Des 202213min
56: An Interview With Lourdes Rocha-Nussbaum, Director of the Cholangiocarcinoma Foundation's Veterans Project
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lourdes Rocha-Nussbaum, director of the Cholangiocarcinoma Foundation's Veterans Project. This program explores the relatively h...
5 Des 202211min
55: An Interview With Darlene Shelton, Founder and President of Danny's Dose Alliance
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Darlene Shelton, founder and president of Danny's Dose Alliance, a Missouri-based nonprofit that seeks to ensure proper emergenc...
18 Nov 202213min
54: An Interview With Aiwu Ruth He, MD, PhD, Associate Professor of Medicine at Medstar Georgetown University Hospital in Washington, D.C.
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Aiwu Ruth He, MD, PhD, an associate professor of medicine at Medstar Georgetown University Hospital in Washington, D.C., and one...
16 Nov 20228min
