53: An Interview With Dr. Brenda Wong, an expert on DMD and director of the MDA Care Center at the University of Massachusetts Chan Medical School
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Brenda Wong, MD, an expert on Duchenne muscular dystrophy and director of the MDA Care Center at the University of Massachusetts...
8 Nov 202215min
52: An Interview With Randi Clites, Rare Disease Policy Director at the Little Hercules Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Randi Clites, rare disease policy director at the Ohio-based Little Hercules Foundation. This nonprofit's mission is to advocate...
1 Nov 20228min
50: An Interview With Sumaira Ahmed, Founder and Executive Director of The Sumaira Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sumaira Ahmed, founder and executive director of The Sumaira Foundation, a Boston-based nonprofit organization that advocates on...
12 Okt 202214min
49: An Interview With Martin Mense, PhD, senior vice president of the Cystic Fibrosis Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Martin Mense, PhD, senior vice president of drug discovery at the Cystic Fibrosis Foundation, and head of the CFF's Therapeutics...
22 Sep 202212min
48: An Interview With Deanna Tucker, Medical Science Liaison and Team Leader at Sarepta Therapeutics
21 Sep 202212min
47: An Interview With NMOSD Expert Dr. Michael Levy of Harvard Medical School
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michael Levy, MD, associate professor of neurology at Harvard Medical School in Boston, Massachusetts, and a leading expert on n...
9 Sep 202213min
46: An Interview With Jennifer Wallace Valdes, PT, Founder of the Duchenne Therapy Network
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jennifer Wallace Valdes, PT, founder of the Duchenne Therapy Network and physical therapist with CureDuchenne, on the importance...
31 Aug 20227min
45: An Interview With Janet Lynch Lambert, CEO of the Alliance for Regenerative Medicine
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Janet Lynch Lambert, CEO of the Alliance for Regenerative Medicine (ARM). This Washington, DC-based nonprofit aims to bring safe...
25 Aug 202218min
