36: An Interview With Shahid Khan, MD, of Imperial College London, on ICD-10 Coding for Cholangiocarcinoma
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Shahid Khan, MD, of Imperial College London, on why an update to ICD-10 coding is urgently needed for correct diagnosis of chola...
21 Jun 202215min
35: An interview with Marissa Penrod, founder of the Indiana-based nonprofit group Team Joseph
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Marissa Penrod, founder of the Indiana-based nonprofit group Team Joseph, which provides financial assistance to families like h...
15 Jun 202211min
34: Dr. Mary Beth Scholand Discusses the Partnership Between CHEST and the Three Lakes Foundation
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Beth Scholand, MD, director of the Interstitial Lung Disease Program at the University of Utah in Salt Lake City. Dr. Schol...
1 Jun 20227min
33: An Interview with Josh Disbrow, CEO of Aytu Bio
Larry Luxner, senior correspondent for Rare Disease Advisor, interiews Josh Disbrow, CEO of Aytu Bio, a Colorado company developing potentially lifesaving products in the areas of pediatric onset and ...
25 Mai 202213min
32: Solid Biosciences Founder Ilan Ganot Discusses His Quest for a Cure for DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ilan Ganot, founder and CEO of Solid Biosciences in Cambridge, Massachusetts. The Israeli-born Ganot started his company in orde...
18 Mai 202212min
31: An Interview With DMD Expert and Gene Therapy Pioneer Dr. Jerry Mendell
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jerry Mendell, MD, professor of neurology and pediatrics at Nationwide Children’s Hospital in Columbus, Ohio. Dr. Mendell is amo...
10 Mai 202212min
30: Dr. Henry Kaminski on the Difficulties of Treating Myasthenia Gravis
3 Mai 202211min
29: Patient Advocate Laura McLinn Discusses Her Son's Journey With DMD
Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Laura McLinn, the Indiana mom of 12-year-old Jordan McLinn, who has Duchenne muscular dystrophy. Jordan, who became the unoffici...
26 Apr 202210min
