Rare Care Podcast

Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

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Episoder(259)

28: Dr. Anthony Feinstein on His New Book About the Neurobehavioral Consequences of MS

28: Dr. Anthony Feinstein on His New Book About the Neurobehavioral Consequences of MS

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Anthony Feinstein, PhD, a professor of psychiatry at the University of Toronto and a world-renowned neuropsychiatrist. We talk t...

22 Apr 202212min

27: Jay Griffin Discusses His Struggles Getting Treatment for His Son With DMD

27: Jay Griffin Discusses His Struggles Getting Treatment for His Son With DMD

11 Apr 202212min

Meredith O'Connor on Her Work Raising Awareness of Myasthenia Gravis

Meredith O'Connor on Her Work Raising Awareness of Myasthenia Gravis

Larry Luxner, senior correspondent for Rare Disease Advisor, talks with Meredith O’Connor, a patient advocate and founder of a chronic illness consultancy, about her efforts to raise awareness of myas...

6 Apr 20227min

26: Dr. Courtney Young Discusses Her Company’s Approach to Treating DMD

26: Dr. Courtney Young Discusses Her Company’s Approach to Treating DMD

30 Mar 20227min

25: Dr. Henry Lin on the Difficulty of Diagnosing LAL-D in Children

25: Dr. Henry Lin on the Difficulty of Diagnosing LAL-D in Children

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Henry Lin, MD, a pediatric hepatologist with Oregon Science & Health University in Portland. Dr. Lin speaks about the difficulty...

23 Mar 20227min

24: An Interview With Dr. Albert Faro, vice president for clinical affairs at the Cystic Fibrosis Foundation

24: An Interview With Dr. Albert Faro, vice president for clinical affairs at the Cystic Fibrosis Foundation

22 Mar 202213min

23: An Interview With Christine Há, award-winning chef and NMOSD patient

23: An Interview With Christine Há, award-winning chef and NMOSD patient

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Christine Há — a blind chef who not only won Season 3 of the reality TV show "MasterChef" in 2012 but went on to write a bestsel...

16 Mar 202211min

22: Dr. Reham Abdel-Wahab Discusses Cholangiocarcinoma Therapies and Possible Future Advances

22: Dr. Reham Abdel-Wahab Discusses Cholangiocarcinoma Therapies and Possible Future Advances

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Reham Abdel-Wahab, MD, PhD, chief scientific officer of the Cholangiocarcinoma Foundation. Dr. Abdel-Wahab discusses recently ap...

7 Mar 202212min

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