Rare Care Podcast

Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

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Episoder(259)

21: An Interview With Lisa Phelps Sarfaty of the National Organization for Rare Disorders Ahead of Rare Disease Day

21: An Interview With Lisa Phelps Sarfaty of the National Organization for Rare Disorders Ahead of Rare Disease Day

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Phelps Sarfaty ahead of February 28, Rare Disease Day. Sarfaty is vice president of community engagement at the National Or...

24 Feb 20229min

20: An Interview With Evanthia Bernitsas, Director of the Multiple Sclerosis Treatment and Immunology Clinical Research Center at Wayne State University

20: An Interview With Evanthia Bernitsas, Director of the Multiple Sclerosis Treatment and Immunology Clinical Research Center at Wayne State University

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Evanthia Bernitsas, MD, director of the Multiple Sclerosis Treatment and Immunology Clinical Research Center at Wayne State Univ...

8 Feb 202213min

19: An Interview With Nicola Longo, MD, PhD,professor of pediatrics and chief of the University of Utah's Division of Medical Genetics in Salt Lake City.

19: An Interview With Nicola Longo, MD, PhD,professor of pediatrics and chief of the University of Utah's Division of Medical Genetics in Salt Lake City.

1 Feb 20226min

18: An Interview With MeiLan K. Han, MD, MS, chief of the University of Michigan’s Division of Pulmonary & Critical Care.

18: An Interview With MeiLan K. Han, MD, MS, chief of the University of Michigan’s Division of Pulmonary & Critical Care.

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews MeiLan K. Han, MD, chief of the University of Michigan’s Division of Pulmonary & Critical Care in Ann Arbor. Dr. Han, a spokeswo...

21 Jan 202213min

17: An Interview With Sigbjørn Berentsen, MD, PhD, a hematologist and senior researcher at Norway’s Haugesund Hospital.

17: An Interview With Sigbjørn Berentsen, MD, PhD, a hematologist and senior researcher at Norway’s Haugesund Hospital.

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sigbjørn Berentsen, MD, PhD, a hematologist and senior researcher at Norway’s Haugesund Hospital. Dr. Berentsen is an expert in ...

13 Jan 20229min

16: An Interview With Researcher Adrian Krainer, PhD, From the Cold Spring Harbor Laboratory in New York.

16: An Interview With Researcher Adrian Krainer, PhD, From the Cold Spring Harbor Laboratory in New York.

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews researcher Adrian Krainer, PhD, from the Cold Spring Harbor Laboratory in New York. Dr. Krainer perfected the RNA splicing techn...

5 Jan 202214min

15: An interview With Michael Yeaman, PhD, chief medical advisor to the Guthy-Jackson Charitable Fund

15: An interview With Michael Yeaman, PhD, chief medical advisor to the Guthy-Jackson Charitable Fund

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Michael Yeaman, PhD, chief medical advisor to the Guthy-Jackson Charitable Fund, based in Los Angeles. Dr. Yeaman speaks about n...

8 Des 20219min

14: An Interview With Donald S. Wood, PhD, president and CEO of the Muscular Dystrophy Association

14: An Interview With Donald S. Wood, PhD, president and CEO of the Muscular Dystrophy Association

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Donald S. Wood, PhD, president and CEO of the Muscular Dystrophy Association (MDA). Their conversation focuses on the latest the...

29 Nov 202113min

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