13: Advocating for Patients and Families Affected by Cold Agglutinin Disease
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cori Forster, vice-president of the Cold Agglutinin Disease Foundation (CADF) — a nonprofit organization formed to advocate for ...
18 Nov 202112min
12: Kamada CEO Amir London Discusses the Company's Work on AATD Therapies
9 Nov 20219min
11: Endocrine Surgeon Dr. Haggi Mazeh Describes the Challenges of Treating MTC
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Dr. Haggi Mazeh, an endocrine surgeon at Hebrew University's Hadassah Medical Center in Jerusalem. Dr. Mazeh, one of Israel's to...
3 Nov 202112min
10: Harsha K. Rajasimha, PhD, on Making Clinical Trials More Inclusive
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Harsha K. Rajasimha, PhD, in Herndon, Virginia. Dr. Rajasimha cofounded the Organization for Rare Diseases India and is now CEO ...
26 Okt 202116min
9: Yale University professor Dr. Naftali Kaminski discusses a new consortium for pulmonary fibrosis with senior correspondent Larry Luxner
Larry Luxner, senior correspondent for Rare Disease Advisor, talks to pulmonologist Naftali Kaminski, MD, professor of medicine and pharmacology and chief of Pulmonary, Critical Care and Sleep Medicin...
21 Okt 202111min
8: Durhane Wong-Rieger, PhD, Discusses the Challenges Faced by Rare Disease Patients in Canada
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durhane Wong-Rieger, PhD, president and CEO of the Canadian Organization for Rare Disorders (CORD) and chair of Rare Diseases In...
13 Okt 202115min
7: A Discussion on Medullary Thyroid Carcinoma With Dr. David Goldenberg
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews David Goldenberg, MD, FACS, a surgical oncologist, and professor and chair of the department of otolaryngology-head and neck sur...
6 Okt 202112min
The Pursuit of Redosable Gene Therapies for Hemophilia with Dr. Doug Kerr
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Doug Kerr, MD, PhD, chief medical officer at Generation Bio in Cambridge, Massachusetts. The company is aggressively pursuing re...
24 Sep 202121min
