#90: Interview With Judy Heumann, Disability Rights Activist
In episode 90, host Kevin Schaefer talks with Judy Heumann, who’s originally from Brooklyn, New York. A pioneer of the disability rights movement, she is one of the primary subjects of the 2020 Netfli...
21 Sep 202142min
SMA Caused by Mutation in ASAH1 Gene Reported in Romania
SMA News Today’s multimedia associate, Price Wooldridge, discusses a first-ever case in Romania of Spinal Muscular Atrophy (SMA) caused by a mutation in the ASAH1 gene. Plus, DeAnn Runge talks about ...
20 Sep 20217min
2 SMN2-targeting Therapies Work Better Than 1 in Mouse Model
SMA News Today’s multimedia associate, Price Wooldridge, discusses how, according to a mouse model, two SMN 2 targeting therapies work better than one. Also, heading into the weekend, DeAnn Runge wan...
16 Sep 202112min
Indigenous Groups in Canada May Have Highest Rate of SBMA in World
SMA News Today’s multimedia associate, Price Wooldridge, discusses indigenous groups in Canada having the highest rate of spinal and bulbar muscular atrophy (SBMA) in the world. DeAnn Runge talks abo...
13 Sep 20219min
Mothers Want to Improve Children’s Quality of Life & Making Friends as an Adult With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how mothers of Spinal Muscular Atrophy (SMA) children and adolescents what to improve their children’s quality of life. DeAnn Runge ...
9 Sep 202112min
#89: Interview with Carole St-Laurent, A Children’s Author With SMA
In episode 89, host Kevin Schaefer talks with Carole St-Laurent from Quebec, Rimouski. Carole is the author of multiple children’s books, for which she writes under the name Rainbow Gal. She talks abo...
7 Sep 202145min
$1M Raised for ‘SpawnTogether,’ Disabled Gamers Project & DeAnn's Jaco Robotic Arm
SMA News Today’s multimedia associate, Price Wooldridge, discusses how $1 million has been raised by a Spinal Muscular Atrophy (SMA) patient for a disabled gamers project. Also, DeAnn Runge talks abo...
6 Sep 20216min
Some SMA Patients Unable to Walk Unassisted May Have Trouble Chewing
SMA News Today’s multimedia associate, Price Wooldridge, discusses how some Spinal Muscular Atrophy (SMA) patients unable to walk unassisted may have trouble chewing. And to close out SMA Awareness M...
2 Sep 20218min
