Behind-the-Scenes of #31DaysofSMA
#InstagramLive here: https://www.instagram.com/tv/CTBDgwbBFm5/ Ally Macgregor chats with Kevin Schaefer (@kevinschaefer19), Katie Napiwocki (@wheelprintsalongthewildflowers) and Samantha Przybylski ...
31 Aug 202150min
SMA UK Network Helps Patients Navigate Adulthood
SMA News Today’s multimedia associate, Price Wooldridge, discusses an SMA UK network which helps patients navigate adulthood, living longer, attending college, pursuing careers, and traveling more. A...
30 Aug 20218min
Most Parents Surveyed in Japan Support SMA Newborn Screening
SMA News Today’s multimedia associate, Price Wooldridge, discusses newborn screening for Spinal Muscular Atrophy (SMA) in Japan and it’s support by most parents surveyed. Plus, not only does the 31 D...
27 Aug 202111min
SMA Type 1 Affects Sensory Nerves as Children Age, Small Study Shows
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) Type 1 affects sensory nerves as children age. Plus, Kevin Schaefer reads a column by Ari Anderson...
25 Aug 202110min
‘Best Possible Outcome’ for SMA? Newborn Screening, Then Zolgensma
SMA News Today’s multimedia associate, Price Wooldridge, discusses the best possible outcome for infants with Spinal Muscular Atrophy (SMA) is newborn screening, then Zolgensma, according to a cost-ef...
23 Aug 20219min
Zolgensma Helps Mobility of SMA Children in Qatari Real-world Study
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the gene therapy Zolgensma helps improve mobility in young children with Spinal Muscular Atrophy (SMA) in a real-world study. Al...
20 Aug 202110min
FDA Lifts Hold on Clinical Trials of Intrathecal OAV-101 & Self-Acceptance and Rejecting Ableism
SMA News Today’s multimedia associate, Price Wooldridge, discusses the FDA lifting its partial hold on clinical trials of Intrathecal OAV-101 for the treatment of Spinal Muscular Atrophy (SMA). Also,...
18 Aug 20216min
#88: SMA Awareness Month & 31 Days of SMA 2021
In episode 88, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and Katie Napiwocki. They discuss this year’s 31 Days of SMA campaign, as well as other topics and news ...
17 Aug 202147min
