SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Denne podkasten er hentet fra en åpen RSS-feed og er ikke publisert av Podme. Den kan derfor inneholde annonser.

Episoder(445)

#75: Alvaro Cheherlian, Founder and CEO of Wrekt Svpply

#75: Alvaro Cheherlian, Founder and CEO of Wrekt Svpply

In episode 75, host Kevin Schaefer talks with Alvaro Cheherlian from Sylmar, California. Alvaro is the founder and CEO of Wrekt Svpply, a clothing brand company. He talks about building his business, ...

2 Feb 202138min

Cure SMA Booklet Outlines Possible Risks, Benefits of Combining Treatments

Cure SMA Booklet Outlines Possible Risks, Benefits of Combining Treatments

SMA News Today’s multimedia associate, Price Wooldridge, discusses a Cure SMA booklet which outlines the possible risks and benefits of combining treatments for Spinal Muscular Atrophy (SMA). Also, ...

1 Feb 20216min

TOPAZ Trial Results on Muscle Therapy Likely by June, Scholar Rock Says

TOPAZ Trial Results on Muscle Therapy Likely by June, Scholar Rock Says

SMA News Today’s multimedia associate, Price Wooldridge, discusses the TOPAZ trial results expected in June on a muscle-directed therapy for Spinal Muscular Atrophy (SMA). Plus, staying social duri...

29 Jan 20216min

Resolutions, Mindsets and Emotions & Transitioning SMA Patients From Older To Newer Wheelchairs

Resolutions, Mindsets and Emotions & Transitioning SMA Patients From Older To Newer Wheelchairs

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Halsey Blocher, From Where I Sit, “Advice From a Life Coach: Resolutions, Mindsets, and Emotions”. Forums Director Kevin ...

27 Jan 20217min

Online for 2021, Team Cure SMA Race Series Planning Variety of Events

Online for 2021, Team Cure SMA Race Series Planning Variety of Events

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Team Cure SMA endurance race series moving online in the current pandemic, and expecting more people to join. Also, Vlogger and ...

25 Jan 20215min

Zolgensma Approved to Treat Young SMA Patients in Canada

Zolgensma Approved to Treat Young SMA Patients in Canada

SMA News Today’s multimedia associate, Price Wooldridge, discusses a Spinraza Phase 4 trial to treat children who failed to respond to gene therapy. DeAnn Runge shares her experience obtaining her f...

22 Jan 20217min

Keeping Your Child with SMA in School During the Cold and Flu Season & Soaring With Hope

Keeping Your Child with SMA in School During the Cold and Flu Season & Soaring With Hope

SMA News Today’s multimedia associate, Price Wooldridge, discusses strategies to keep your child with Spinal Muscular Atrophy (SMA) in school during the cold and flu season. Forums Director Kevin Sch...

20 Jan 20218min

New Cure SMA Webinar Series to Focus on Health, Wellness & Let's Talk About Sex and SMA

New Cure SMA Webinar Series to Focus on Health, Wellness & Let's Talk About Sex and SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Cure SMA three-part webinar series on wellness topics for the Spinal Muscular Atrophy community. Typically a taboo topic, sex an...

18 Jan 20215min

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