Higher-dose Spinraza Trial Now Enrolling Part B After No Safety Issues Found
SMA News Today’s multimedia associate, Price Wooldridge, discusses a higher dose Spinraza trial now enrolling Part B after no safety issues were found. Also, DeAnn Runge shares her personal experienc...
15 Jan 20217min
This Year, I Want to Be Brave & The Challenges That Come With Pursuing Independence
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Brianna Albers, The Wolf Finally Frees Itself, “This Year, I Want to Be Brave”. Forums Director Kevin Schaefer talks about...
13 Jan 20218min
Informal SMA Caregivers Surveyed in Europe Report High Daily Burden & Relevant Topics On The Forums
SMA News Today’s multimedia associate, Price Wooldridge, discusses how non-professional caregivers who care for children with Spinal Muscular Atrophy (SMA) carry a high daily burden that negatively af...
11 Jan 202110min
Zolgensma Linked in 3 Cases to Serious But Treatable Blood Disorder
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma is linked in three cases to a serious but treatable blood disorder. Are you interested in learning more about spinal ...
8 Jan 20219min
Zolgensma Approved to Treat Young SMA Patients in Canada & Kidney Stone And a Trip To The ER
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma approval in Canada for the treatment of young Spinal Muscular Atrophy patients. Also, Forums Director Kevin Schaefer tells...
6 Jan 20218min
#73: Interview With Tyler Dykema, Artist and Musician with SMA
In episode 73, host Kevin Schaefer talks with Tyler Dykema from Grand Rapids, Michigan. Tyler is an artist, musician, and punk rock connoisseur who has SMA Type II. He talks in this episode about grow...
5 Jan 202138min
Paramedian Injection Approach Found to Ease Spinraza Administration & Difficult On Getting Evrysdi
SMA News Today’s multimedia associate, Price Wooldridge, discusses administering Spinraza (nusinersen) via a paramedian injection to shorten procedure times and reduce adverse events. SMA News Today’...
4 Jan 202110min
Ella Has Fun While Sheltering at Home & Stepping Into a New Me in the Year Ahead
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Michael Casten, “Five Servings of Strength”, Ella Has Fun While Sheltering at Home. SMA News Today’s forums moderator, De...
1 Jan 20217min
