TSC Talks! Alexis Minnaar, Living with TSC; Never A Dull Moment-A South African Perspective
In Part 1 of this two-part episode, Alexis Minnaar, an English and Geography teacher from South Africa, and young adult living with Tuberous Sclerosis Complex shares the process of coming to terms wit...
30 Aug 201946min
TSC Talks! "Occupant with Autism" Autism & the Role of Law Enforcement with Chief Joseph Snyder & Officer Phil Kraus, New Paltz, NY PD
Chief Joseph Snyder & Officer Phillip Kraus of the New Paltz, NY Police Department discuss their background and experiences with community members that sparked the idea behind their new "Occupant with...
12 Aug 201932min
TSC Talks! Mark Martin, THE TSC CONNECTOR! 6 State Regional Coordinator, Advocate, Musician & Adult & Parent Living w/TSC
Mark Martin is an Adult & Parent living with TSC. He also is the Adult Regional Coordinator of 6 States for the TS Alliance, & was a past Volunteer of the Year. He started a Facebook group for TSC Dad...
11 Aug 20191h 3min
TSC Talks! An Invitation to Inspiration with Devoted Dad, Husband & TSC Advocate Rob Grandia
Rob Grandia is an adult with TSC and father of 3 children affected by TSC. In this episode, he gives an inside look at not only receiving a diagnosis of TSC in his children but also finding out as an ...
1 Aug 201950min
TSC Talks! IDD & Me; "I Wish He Could Talk", on Sibling Impact with Max Piltz, brother to Nicky, with TSC, IDD
Max Piltz, brother of Nicky, the inspiration for Nicky's Gardens of Hope, gives his 2 cents on life with a nonverbal sibling who is significantly impacted by Tuberous Sclerosis Complex and Intellectua...
25 Jul 20197min
TSC Talks! "There is No Other Choice" Nicky's Gardens of Hope or Bust, with TSC Mom, Founder & CEO Adriana Piltz
Adriana Piltz, is Founder & CEO of Nicky's Gardens of Hope (NGOH). She came on the podcast back in October 2018 to give us an introduction and explanation of this one of a kind project. In this episod...
24 Jul 201944min
TSC Talks! Part 2; Are You Listening? "This is Who I Am & This Is What Our Family Is" with Cecilia Pratt
In Part 2, Cecilia talks about coping, working out, overcoming a food addiction, feeling like everything is on her shoulders and dealing with burn out. She also discusses getting unsolicited advice, d...
23 Jul 201939min
TSC Talks! Part 1; Are You Listening? Getting Real with Cecilia Pratt, TSC Case Manager & Mom
Cecilia Pratt, reached out via Facebook to share her lived experience of a TSC diagnosis in her son and former husband. She clearly depicts how it felt to receive this heavy diagnosis download in a de...
22 Jul 201938min
