TSC Talks!

TSC Talks!

TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!

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Episoder(155)

TSC Talks! Hope on the Horizon, Part 2-with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance

TSC Talks! Hope on the Horizon, Part 2-with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance

Jaye Isham, VP of Communication Strategy @ TS Alliance, and beloved TSC community member shares from his work and lived experience in Part 2 of this 2 part episode. A quote that says it all: "Yeah, yo...

11 Jul 201942min

TSC Talks! Hope on the Horizon, with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance

TSC Talks! Hope on the Horizon, with Jaye Isham, Master Communicator & VP of Communication Strategy, TS Alliance

Jaye Isham, VP of Communication Strategy @ TS Alliance, and beloved TSC community member shares from the annals of his lived experience in Part 1 of this 2 part episode you don't want to miss. In his...

9 Jul 201947min

TSC Talks! The Power of TSC Moms; From Gratitude to Grief & Back; 6 Sound Bites.

TSC Talks! The Power of TSC Moms; From Gratitude to Grief & Back; 6 Sound Bites.

In this episode, I tried something different! I used pieces of pertinent audio from 6 past guests, some has been released in previous episodes and some content is from the cutting room floor. I kick ...

28 Jun 201931min

TSC Talks! Trauma 101-A Preview; For Parents of Medically Complex Kids-with Caroline Clyborne, LPC

TSC Talks! Trauma 101-A Preview; For Parents of Medically Complex Kids-with Caroline Clyborne, LPC

Caroline Clyborne, LPC gives us the low down on her upcoming webinar, "Trauma 101-For Parents of Medically Complex Kids" on June 25, 2019. Previously on TSC Talks, Episode 27, Caroline gave us an exce...

20 Jun 201951min

TSC Talks! Part 3-It's a Wrap. TAND, TANDem, ETC; with Dena Hook, VP of Support Services, TS Alliance

TSC Talks! Part 3-It's a Wrap. TAND, TANDem, ETC; with Dena Hook, VP of Support Services, TS Alliance

In Part 3 of this three-part series with Dena Hook, VP of Support Services at the TS Alliance, what I want to highlight in this description is our discussion of Tuberous Sclerosis Complex-Associated N...

19 Jun 201956min

TSC Talks! Dedicated, Dynamic Dena! Part 2; Creation, Implementation & Development of Volunteer Programs at the TS Alliance

TSC Talks! Dedicated, Dynamic Dena! Part 2; Creation, Implementation & Development of Volunteer Programs at the TS Alliance

In Part 2, Dena discusses crossing paths with Kari Rosbeck (TS Alliance President) and how she got her first position with the TS Alliance, moved to DC and never looked back. She outlines the developm...

12 Jun 201927min

TSC Talks! Dedicated, Dynamic Dena! Part 1; Her Early Career; Dena Hook, VP of Support Services, with the TS Alliance

TSC Talks! Dedicated, Dynamic Dena! Part 1; Her Early Career; Dena Hook, VP of Support Services, with the TS Alliance

The TSC world famous & beloved Dena Hook, Vice President of Support Services at the TS Alliance comes on the podcast to discuss, well, a lot. This is Part 1 of our conversation and Dena walks us thro...

7 Jun 201928min

TSC Talks! The Benefits of Community Connection, Turning the Tables on TSC with Emilie Peters

TSC Talks! The Benefits of Community Connection, Turning the Tables on TSC with Emilie Peters

My guest, Emilie Peters, hailing from Oklahoma, is a Junior Leader with the TS Alliance, co-facilitator for the new TSC Young Adult Connect Group, and just received her Associates Degree from Tulsa Co...

30 Mai 201952min

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