Episode #042: Jackie Ceonzo: A Hero Serving Severe Autism in NYC

Episode #042: Jackie Ceonzo: A Hero Serving Severe Autism in NYC

If Jill were to create a pantheon of Autism Gods, Jackie Ceonzo would be right there in the center. She is the rare autism mom who struck out to create recreational and enrichment classes and activities for children and adults with severe forms of autisms. Including "the biters," as Jackie puts it. The kids who routinely get rejected from other special needs programs because of their behaviors. The kids who cost the most money. Jackie is a force of nature who founded SNACK*, a program located in midtown Manhattan, where clients can access a wide variety of options and "Snacktivities," including swim, art, music, yoga, soccer and cooking lessons. The ratio is typically 1:1 depending on client needs. It's a rare gem that should be available, well, everywhere, but she faces many obstacles, including discriminatory policies that penalize programs for those with severe autism, and the need to raise a lot of money to cover the considerable costs.This is a can't-miss episode!Links:SNACK* NYC: https://www.snacknyc.com
Shop Cup of Joe Coffee and other items: https://shop.snacknyc.com

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Episode 19 - Medical Cannabis for Autism: Science, Practice and Policy

Episode 19 - Medical Cannabis for Autism: Science, Practice and Policy

Michelle Wright is the Maryland-based mother of a young man with severe autism whose condition markedly improved with the use of medical cannabis. Michelle dove deep into science and practice, even o...

14 Nov 202243min

Episode 18 - Autism: The POOP Episode

Episode 18 - Autism: The POOP Episode

Fecal smearing and anal digging are two of the most distressing behaviors seen in autism. In this episode, we speak with Dr Joyce Tu, Ed.D., BCBA-D, and Kelly Bermingham, BCBA, of Easter Seals Souther...

7 Nov 202235min

Episode 17 - The Power Duo Teaching Kids with Autism to Swim

Episode 17 - The Power Duo Teaching Kids with Autism to Swim

Drowning is the leading cause of death in children with autism under age 14. Shirley Fett and Tammy Anderson are working to change that. Shirley, an executive board member of Autism Society San Diego,...

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Episode 16 - Wendy Fournier and Lori McIlwain: A Passion for the Safety of Autism Families

Episode 16 - Wendy Fournier and Lori McIlwain: A Passion for the Safety of Autism Families

The National Autism Association is a leader in helping families and communities prevent autism emergencies, particularly when it comes to the prevalent and often-lethal phenomenon of elopement. NAA Pr...

27 Sep 202232min

Episode 15 - Kate Movius

Episode 15 - Kate Movius

Kate Movius move to Hollywood to pursue an acting career but then her firstborn son, Aidan, was diagnosed with severe autism. Kate’s life became overwhelmed by lack of sleep and her son’s frequent, an...

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Episode 14: Mizpah Brown-Rich

Episode 14: Mizpah Brown-Rich

This month, September 2022, we honor the second year of the September 26th Project — the annual emergency preparedness reminder for autism and special needs families created in memory of Feda Almaliti...

5 Sep 202243min

Episode 13 - Thomas McKean Is an Autism Self-Advocate Who Stands Up for Parents

Episode 13 - Thomas McKean Is an Autism Self-Advocate Who Stands Up for Parents

The internet sees rampant bullying of autism parents but Tom McKean is calling BS. Diagnosed with autism in his teens, Tom, now in his mid-50s, became one of autism’s very earliest self-advocates, alo...

20 Juni 202249min

Episode 12 - Jill Barker Wants You to Understand Developmental Disability Policy

Episode 12 - Jill Barker Wants You to Understand Developmental Disability Policy

Knowledge is power! And Michigan-based Jill Barker, mother of two men with developmental disabilities, ages 45 and 37, wants you to know the latest about federal and state DD policy. Jill publishes Th...

13 Juni 202246min

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