Bria from Wales, a professional patient rights advocate
The POTScast9 Aug 2025

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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Avsnitt(250)

E108: Mel from Texas, a nurse living with POTS after a concussion

E108: Mel from Texas, a nurse living with POTS after a concussion

Mel's life changed after a concussion that led to more serious POTS symptoms. A nurse, she was struggling with symptoms when she confided in a friend who had POTS. Could it be that Mel had it too? You...

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E107: Benefits of compounding medications for those with sensitivities with Michelle Briest, PharmD

E107: Benefits of compounding medications for those with sensitivities with Michelle Briest, PharmD

Many in the POTS and MCAS communities react to medications. Perhaps using a compounding pharmacy that can replace inactive ingredients with alternatives that are less likely to cause a reaction is a g...

3 Jan 202319min

E106: All Things Pediatric POTS with Dr. Jeff Boris and Dr. Jeff Moak

E106: All Things Pediatric POTS with Dr. Jeff Boris and Dr. Jeff Moak

Dr. Boris and Dr. Moak, true POTS experts, take us through their new review article Pediatric POTS: Where We Stand and discuss developmental issues for children and teens, treatment options including ...

27 Dec 20221h 4min

E105: Karen from Missouri, a nurse and mom with POTS symptoms from a young age

E105: Karen from Missouri, a nurse and mom with POTS symptoms from a young age

Karen has had POTS symptoms for as long as she can remember, and started passing out at age 15. Unfortunately, it took many doctors and 17 years to get diagnosed. She shares her experience with POTS a...

24 Dec 202237min

E104: Understanding myalgic encephomyelitis/chronic fatigue syndrome through research and personal experience with Dr. Leonard Jason

E104: Understanding myalgic encephomyelitis/chronic fatigue syndrome through research and personal experience with Dr. Leonard Jason

Dr. Leonard Jason, world renowned father of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) research, shares his very personal story with this illness along with what he has learned in his...

20 Dec 202256min

E103: Handling Holiday Stress with Dr. Katie Gorman-Ezell

E103: Handling Holiday Stress with Dr. Katie Gorman-Ezell

The holidays can be stressful, especially when living with an unpredictable illness like POTS. Learn how to ask for what you need and make compromises as you form new holiday traditions! You can dread...

13 Dec 202232min

E102: Lacy from Alabama suffers from gastroparesis, pain, and POTS

E102: Lacy from Alabama suffers from gastroparesis, pain, and POTS

Lacy is a high school student who struggles to remember a time she wasn't sick. Gastroparesis is a big issue for her and she often uses a cane for stability. She's quite upbeat, though, and ready for ...

10 Dec 202219min

E101: Pelvic Congestion Syndrome and POTS with Dr. Steven Smith

E101: Pelvic Congestion Syndrome and POTS with Dr. Steven Smith

Dr. Smith is a retired interventional radiologist who made a discovery in his career treating women with pelvic congestion syndrome (PCS):  His patients with comorbid POTS often said the PCS treatment...

6 Dec 202251min

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