Bria from Wales, a professional patient rights advocate
The POTScast9 Aug 2025

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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Avsnitt(250)

Christmas Poem 2022 — Why Santa donates to Standing Up to POTS

Christmas Poem 2022 — Why Santa donates to Standing Up to POTS

You can read the transcript for this poem here: https://tinyurl.com/potscastholiday22

3 Dec 20224min

E100: POTS Research both Past and Future with Dr. Satish Raj

E100: POTS Research both Past and Future with Dr. Satish Raj

Dr. Raj is a world renowned POTS physician and researcher who spoke with us about three big POTS research topics: blood volume, autoimmunity, and the norepinephrine transporter. Having done much of th...

29 Nov 202251min

E99: Zoe from Utah, high school senior and aerialist

E99: Zoe from Utah, high school senior and aerialist

Zoe was diagnosed with POTS in 8th grade when she started having dizzy spells and shortness of breath. She has adjusted well, and loves to fly 30 feet above the ground doing ribbon aerial work. Great ...

22 Nov 202227min

E98: Sensory Input Shaping Autonomics in Children with Dr. Kevin Lasko

E98: Sensory Input Shaping Autonomics in Children with Dr. Kevin Lasko

What is really causing POTS? Is it a problem in the heart? The brain? The gut? Dr. Lasko believes that lower parts of the brain may not be functioning properly in many with POTS, and that correcting t...

15 Nov 202248min

E97: Mackenzie from British Columbia, Canada

E97: Mackenzie from British Columbia, Canada

Like many POTSies, Mackenzie was a teenager leading an active life when she became ill. It took her 2.5 years and a number of ludicrous diagnoses to finally arrive at POTS. At 20, she is now adjusting...

8 Nov 202230min

E96: Jackie from Vermont, working mom with great symptom management tips

E96: Jackie from Vermont, working mom with great symptom management tips

Jackie developed POTS and other chronic illnesses after surgery on her foot. She delves deeply into her interests, including ways to manage her symptoms. Her optimism is inspiring as she share things ...

5 Nov 202241min

E95: Common POTS Medications with Clinical Pharmacist Dr. Jenna Houk

E95: Common POTS Medications with Clinical Pharmacist Dr. Jenna Houk

Many POTSies take multiple medications. Join us for a discussion of beta blockers, midodrine, ivabridine, and fludrocortisone - how they work and possible side effects. Please click the "subscribe" bu...

1 Nov 202251min

E94: The Depressing Truth about Depression Scales with Dr. Cathy Pederson

E94: The Depressing Truth about Depression Scales with Dr. Cathy Pederson

Dr. Pederson just published a new study looking at assessing depression in people with chronic invisible illness.  The results are both depressing and enlightening. We need our healthcare practitioner...

25 Okt 202240min

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