Bria from Wales, a professional patient rights advocate
The POTScast9 Aug 2025

Bria from Wales, a professional patient rights advocate

Bria started having symptoms in college, as an art and theater major, and told her doctor she suspected POTS. It still took her 8 more years to get a formal diagnosis. Bria is still looking for better solutions and answers (using ChatGPT), constantly experimenting and also working on acceptance.

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Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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Avsnitt(250)

E86: Jamie Lynn from Kentucky

E86: Jamie Lynn from Kentucky

It took Jamie 12 years to be diagnosed with POTS after the onset of symptoms. She had "remissions" from symptoms in the early years that allowed her to become a firefighter and EMT, positions she can ...

13 Sep 202227min

E85: Dealing with Medical Trauma with Dr. Katie Gorman-Ezell

E85: Dealing with Medical Trauma with Dr. Katie Gorman-Ezell

Many people in the POTS community have experienced medical trauma as a patient, caregiver, or sibling. Gaslighting, invasive procedures, and the chronicity of the illness can all contribute. How can y...

6 Sep 202240min

E84: Stephanie w 3 concussions and POTS from MD

E84: Stephanie w 3 concussions and POTS from MD

Stephanie was a competitive volleyball player in high school when several concussions sidelined her. Over time, POTS symptoms began to appear and the battle to get diagnosed began. It took several yea...

3 Sep 202236min

E83: Maddie and her therapy dog from Michigan

E83: Maddie and her therapy dog from Michigan

Maddie faints a lot as part of her POTS, which she developed around age 16. She describes getting and training her therapy dog and the deep pressure that helps when she blacks out. Maddie has a great ...

30 Aug 202232min

E82: Are Choline Transporters Implicated in Some POTS Patients? with Dr. Laila Schenkel

E82: Are Choline Transporters Implicated in Some POTS Patients? with Dr. Laila Schenkel

Dr. Laila Schenkel is a molecular geneticist who specializes in choline transporters. Comparing this transporter in the skin of one POTS patient with controls, she found that these transporters are fe...

23 Aug 202235min

E81: Katherine from Pennsylvania

E81: Katherine from Pennsylvania

Katherine developed POTS secondary to Lyme disease after a tick bite, causing her to complete her senior year of high school online. When at her sickest, she re-connected with the man she would marry....

20 Aug 202234min

E80: Mary Katherine Stratton from Mississippi

E80: Mary Katherine Stratton from Mississippi

Mary Katherine has developed POTS twice - first as a teen and again after COVID. Her PICC line to get intravenous fluids made lifting heavy objects impossible, especially for a cattle breeder who love...

16 Aug 202229min

E79: Employment Resources for the Chronically Ill with Chronically Capable CEO and co-Founder Hannah Olson

E79: Employment Resources for the Chronically Ill with Chronically Capable CEO and co-Founder Hannah Olson

Hannah has Lyme and POTS, and after working for others for a few years founded her own company - Chronically Capable. Featured by the Wall Street Journal and Forbes magazine, her company matches chron...

9 Aug 202233min

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