Living With Cystic Fibrosis

Living With Cystic Fibrosis

Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire

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Avsnitt(208)

A Kid Again Adventures

A Kid Again Adventures

We’re talking today with the founder of A Kid Again, Kathy Derr. It is a nonprofit organization that plans family adventures in many states across the U.S.  and the adventures are free to families.Kat...

7 Nov 202230min

Our first CF Podcast in Spanish

Our first CF Podcast in Spanish

Dr. Jennifer Shedden of Genentech reached out to the Bonnell Foundation to raise awareness about cystic fibrosis in the Hispanic community, and the non-CF community.  We started the CF Familia page!We...

3 Okt 202228min

Costly transplants: don't go broke.   More help...

Costly transplants: don't go broke. More help...

The Children’s Organ Transplant Association (C.O.T.A), helps people waiting for transplants, fund the procedure and everything that surrounds it. Laura Bonnell learned about COTA when her nephews need...

12 Sep 202233min

CF and Colon Cancer with Anna Payne

CF and Colon Cancer with Anna Payne

CF and Colon cancer, the risks are higher than you may be aware.  Anna Payne is 35 years old and was diagnosed with stage 4 colon cancer a year ago.Anna is advocating to get colon cancer screening dow...

22 Aug 202245min

Andrea and Alyson Hoffman

Andrea and Alyson Hoffman

Andrea Hoffman and Alyson are twins born with CF. Andrea is 30 seconds older than her sister.  The women attend Ohio Northern University.  As you will hear, they are over achievers!This is the twin’s ...

11 Juli 202244min

Dr Jennifer Shedden

Dr Jennifer Shedden

Dr. Jennifer Shedden, with Genentech, reached out to the Bonnell Foundation to see if we were interested in raising awareness about cystic fibrosis in the Hispanic community, and the non CF community....

5 Juli 202239min

Wes Hawkins -CF with PRIDE

Wes Hawkins -CF with PRIDE

As we wrap up pride month, we have a lovely story to tell you.  It’s Wes Hawkins story. All of us at The Bonnell Foundation know there are many people with CF that are in the LGBTQ PLUS community. Hos...

27 Juni 202251min

My Mom,  Lois Teicher and I talk all things CF!

My Mom, Lois Teicher and I talk all things CF!

My Mom, Lois Teicher is a famous sculptor in the U.S. and a strong cystic fibrosis supporter.  In this podcast we talk about how grandparents feel when they hear the CF diagnosis.  I realized that I w...

20 Juni 202223min

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