Living With Cystic Fibrosis

We’re honored to talk with Dr. Ryan Thomas on this podcast.  Dr. Thomas is one of the Bonnell Foundations Advisory Council members. A Grosse Pointe native, Dr. Thomas is a wealth of information.  A Mi...

21 Mars 202237min

Mallory Smiths book, Salt in my Soul was published posthumously by her mother, Diane Shader Smith (husband Mark) after she died from CF at the age of 25 years old.  Smith died after a double lung tran...

7 Mars 202255min

Bijal Trivedi is a journalist and an author. She spent 8 years writing the book, Breath from Salt.  It's an in-depth look at how parents with CF children banded together to start what is now the Cysti...

28 Feb 202255min

Rebekah Farley is someone you may know from Instagram or the QVC channel where she is a Plus size model. Rebekah and her husband Craig,have a 6 year old daughter Madelynn with cystic fibrosis and a so...

14 Feb 202240min

Gunna Esiason is 30 years old and is living with cystic fibrosis. He inspires his peers in the CF community every single day. If you have seen Gunnar’s blog, follow him on twitter, listened to his pod...

31 Jan 202236min

The future of CF pulmonologists! We all can play a role.Thanks to the generosity of SPARK Healthcare, Biophyiscs Corp. Drs. Susan Millard and Ahmet Uluer, (along with help from the Bonnell Foundation)...

24 Jan 202233min

Kim Bowman, and her husband Brian are two of the strongest people I know.  Kim and I have been friends for a long time.  We both had two children with cystic fibrosis…she had two boys, (Blake and Bret...

17 Jan 202236min

Dr. Heather Walter is a CF Mom.  I first heard Heather speak at a Mom's retreat in 2021 (via zoom). I was so impressed with her I asked her to speak on this podcast.She is the Director of the School o...

10 Jan 202253min