Living With PANDAS as a Teen: Tics, Seizures and Sudden OCD

Living With PANDAS as a Teen: Tics, Seizures and Sudden OCD

In Episode Two Lucy meets Jessica, a warm and courageous 14 year old with PANDAS. Her initial symptoms were tics and anxiety, but progressed to multiple non-epileptic seizures every day. She talks about having a "pet panda in her brain that causes havoc" and how her PANDAS diagnosis was the worst day of her life.

IVIg - Intravenous immunoglobulin - an immunotherapy that can help some people with PANS/PANDAS

EDS - Ehlers-Danlos syndrome is a disease that weakens the connective tissues of your body

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(24)

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of...

18 Touko 56min

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks))This week...

4 Touko 56min

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m ...

12 Huhti 56min

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

Dr Zoe Gillispie is one of the world's leading neuroimmune-psychiatric psychologists, working with children and families with PANS/PANDAS from her Californian practice. Here she shares insights and ex...

18 Maalis 54min

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Why Children With PANS Struggle With Everyday Life | Occupational Therapy Explained

Michelle Newby thinks that Occupational Therapy should be the fourth pillar of PANS/PANDAS treatment, after controlling inflammation and infection and psychiatric and psychological help. She works clo...

28 Helmi 46min

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

Living With PANS/PANDAS and Fighting Back | Kirk Lord’s Story

"I want every single kid, every single teen, every single young adult, every single adult with PANS/PANDAS to realise what they are capable of because they are capable of so much more than their disor...

20 Helmi 46min

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

Recovering From PANS/PANDAS: A Teenager’s Story of Hope

In this episode of PansPandas Stories, host Lucy McDonald interviews Freya Shacklock, a 19-year-old who shares her inspiring journey of recovery from PANS-PANDAS, a condition that caused her severe me...

5 Joulu 202550min

PANS Flares, Medication and Recovery | Dr Kiki Chang

PANS Flares, Medication and Recovery | Dr Kiki Chang

It has been a while since the last PANS PANDAS Stories and our return is marked by an interesting chat with Dr Kiki Chang. He has a long PP pedigree and now works privately in the States where he has ...

17 Marras 202549min

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