My Daughter Changed Overnight: A Father’s PANDAS Story

My Daughter Changed Overnight: A Father’s PANDAS Story

This week, Jo Joyner talks to Gareth Costello about his daughter Rose who went from a confident, popular girl, who loved school, to a shadow of her former self almost overnight. Gareth describes this change, as a "light switch" moment.

The trigger? A sore throat. He talks about rushing home from work to a changed child, the relief of being listened to by a GP, and how he is giving something back to the PANS/PANDAS community by fundraising.

Listen to how 12-year-old Rose is doing now, in Episode 3 of PANS/PANDAS Stories....


*****Coming up over the next few weeks - interviews with paediatrician, Dr Tim Ubhi, nutritionist and naturopath Lucinda Miller and Jessica's mother, Helen Huitson.*****

******We are planning Series Two of PANS/PANDAS Stories. Thanks to everyone who has responded to the poll. From your feedback, we know you want more chats with sufferers of PANS/PANDAS themselves as well as with experts. Please contact us, if you would like to share your story (DM on our Insta page please!)

*****We've also been asked for a Q&A session with experts and are working out the best way to do this. So again watch this space. ******

*****There is so much we want to do - including interviews with adults, as we know this isn't just a paediatric illness. Interviewees so far have had PANDAS, but IVs with PANS sufferers are also in the pipeline.

***** Thanks so much for your support. We can't do this without you, so please rate and follow us, to help spread the word, provide support to parents and sufferers, and raise awareness.*****

Lucy and Jo xxxx

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Jaksot(28)

Maternal anxiety, when the burden becomes the blame, and holding the biological frame. My speech at the PANS PANDAS UK conference

Maternal anxiety, when the burden becomes the blame, and holding the biological frame. My speech at the PANS PANDAS UK conference

I had 10 minutes to speak about how to support parents at the PANS PANDAS UK Conference in October. In reality I could have spoken for hours on this subject. I think supporting parents is such a big p...

28 Loka 11min

Expert: Paediatric PANS & OCD specialist Barb Shephard talks ERP

Expert: Paediatric PANS & OCD specialist Barb Shephard talks ERP

** NOTE - IN THIS EPISODE I say that inference-based CBT is not evidence-based. This is wrong. I meant it is not evidence-based in children yet (although that work is underway) but it is evidence-info...

23 Syys 52min

OCD Special: I-CBT - Suicidal Intrusive Thoughts with Therapist Angela Henry

OCD Special: I-CBT - Suicidal Intrusive Thoughts with Therapist Angela Henry

OCD and PANS PANDAS specialist Angela Henry talks about treating OCD using I-CBT. This is a different approach that focuses on doubt – particularly how OCD can make us distrust what we know through ou...

10 Syys 1h

The Day Our Children Changed Overnight: Two Mothers on PANS/PANDAS

The Day Our Children Changed Overnight: Two Mothers on PANS/PANDAS

A whopping episode-in more ways than one. In this podcast I speak to PANS/PANDAS parent and advocate Lindsey Forsyth and her friend and fellow PANS/PANDAS mother, Kate Rooney. Longer than normal, as t...

6 Heinä 1h 14min

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

IVIG, Rage, and how music heals. Dr Patrick Whelan shares insights PANS PANDAS

Dr Whelan is a rheumatologist from UCLA in California. He describes his discipline as almost the last port of call for many suffering from PANS/PANDAS but describes how his specialist understanding of...

18 Touko 56min

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

Treating the Whole Child: PANS/PANDAS, Neuroinflammation & Hope with Dr. Leila Mason

((Before I talk about this episode, I have a favour! Please scroll down - there is a survey link below - 20 minutes of your time could shape the future of therapy for this illness 💛 Thanks))This week...

4 Touko 56min

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg talks about PANS/PANDAS, encephalitis, dystonia, OCD, Bartonella and Lyme Disease

Evie Meg is the most well known advocate for immune mediated neuropsychiatric disorders with more than 15 million followers on TikTok (which I worked out is twice as many as Coldplay, people!) and 1m ...

12 Huhti 56min

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

OCD, PANS & Dr Zoe Gillispie: What Parents and Therapists Need to Know

Dr Zoe Gillispie is one of the world's leading neuroimmune-psychiatric psychologists, working with children and families with PANS/PANDAS from her Californian practice. Here she shares insights and ex...

18 Maalis 54min

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