Ep:15 Real Cyster Story with Anuhya Korrapati: Diagnosis Challenges and Impact of PCOS on quality of life

In this episode I have invited ⁠⁠⁠⁠⁠⁠⁠⁠⁠a fellow cyster , ⁠Anuhya Korrapati⁠ a Senior Research Fellow , pursuing her PhD in Health Economics at christ university,Bengaluru. She holds an MSc in Health Economics from the University of York, where she was awarded the Postgraduate York Gold Award in 2019. Currently, Korrapati is focusing on Polycystic Ovary Syndrome (PCOS) and has presented her research findings at several prestigious institutions, including IGIDR (Indira Gandhi Institute of Development Research) in Mumbai, PondicherryUniversity, AIIMS Kanpur, FLAME University, and the University of Sheffield, UK. In 2019, Korrapati founded ⁠BeyondBlood⁠ ( peer support group for PMDD , registered not for profit ) and served on the Youth Advisory Board of IAPMD, USA. As a Policy Fellow at YLAC (Young Leaders for Active Citizenship), Korrapati was part of a four-member team that drafted the Menstruation Benefit Bill 2018. Additionally, she contributed to creating an advocacy campaign for menstrual leave. In this episode we have a very candid conversation about recognising pcos symptoms and managing mental health , a very under-spoken aspect of PCOS. Below are some of the highlights of our conversation

• Anuhya's personal journey of understanding PCOS, diagnosis challenges and how her diagnosis impacted her life and making choice of taking up an academic career as a PCOS researcher
• Current challenges and gaps in PCOS healthcare space in India and what measures must be taken to address these gaps?
• Latest on PCOS research in India and what we have learnt so far?
• Challenges we face as patients while accessing care for PCOS in the world of social media
• Anuhya's research on understanding the real impact of PCOS on patients with respect to the quality of life , getting access to right PCOS care and the costs incurred while navigating through PCOS diagnosis and care.

• Survey link: ⁠https://pcosresearcher.limesurvey.net/723549?lang=en⁠

PCOS CLUB INDIA is proud to collaborate as an outreach partner for this PCOS research led by Anuhya Korrapati at Christ University Bangalore, India. If you are keen to share your experiences while navigating your PCOS , we would love to hear form you . To all our community , I request you to please contribute by participating in this survey so that we have more and more representation of the patient voice for this survey.

If you are newly diagnosed with PCOS or have been struggling for years to take charge of your PCOS, this podcast is packed with all the answers you would be looking for!

For more PCOS related content, follow me on ⁠⁠⁠⁠⁠⁠@pcosclubindia⁠⁠⁠⁠⁠⁠ on Instagram, ⁠⁠⁠⁠⁠⁠Youtube⁠⁠⁠⁠⁠⁠ or log on to my website www.pcosclubindia.com

Enjoy Listening and I will see you on the next episode.

Be #strongerthanpcos !